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I need answers cause its driving me crazy

jrandall10

Hey everyone, I have a few things that I wondered if you fab people could offer any advice on. Dm is our six year old daughter, she has ASD and SPD.


1. Last year when visiting my dad down South, Dm was wearing crocs and got a drawing pin in the bottom of her shoe that stab her foot. Since then anytime she sees pins she gets really anxious and points at them. I have tried ignoring, redirecting her and comforting her but it doesn't work. Does anyone else get this issue?


2. Our learning mentor and sen person at my school where I work have told me that ASD children can't lie cause they don't see the point or understand why you would lie but Dm lies about things loads? What does everyone else think?


3. She also has Dr Jekyll and mr Hyde mood swings that come out of no where and we have no clue what to do. Should we be trying to calm her all the time or just go with the flow?


4. We have realised that we can't expect so much from her cause she just can't cope with even simple things but we worry that if we do everything for her she will never learn or grow to be independent, r we doing right?


5. If she can't sleep or wakes up, she won't/can't explain why but will get pain in different places and cry uncontrollably, is this anxiety or something else? What could we do to help?


6. I have done a big display on our wall for all her visuals but she doesn't seem worried about them, should we carry on using them?


7. She has loads of toys and has no interest in half of them, I say we will sell them which we do but then months later she asks for them. I have no storage to keep hording things but cant afford to keep replacing them either. We try to play with her but she loses the plot. Does anyone else have this same struggle?

Also how can we help her with socialising?

Sorry about all the questions and massive post but we are stuck

Thanks loads everyone xxxx

Parents

  • Number 2 is a myth, and well.....what do you expect from an SEN person? These people seem mostly to have no training on autism yet pose as having expertise. Most seem worse than useless - like 19th century midwives and wet nurses, that lost many more babies than saved.

    What possible reason would there be for this being true? It probably relates to people on the spectrum not seeing a need to lie in social situations, or for political correctness or tact. But that refers to socialisation difficulties, not some magic reason for not lying at all.

    If anything the reverse is likely, for self defence.

    Mood things might be due to other factors such as bipolar. Do you mean that sometimes she is distressed, due to sensory issues, and at other times she is happy? It is more likely with autism that there are underlying factors that you could look out for and identify.

    Regarding 4, it is difficult to draw conclusions at the age of 6.

    I cannot comment on the other numbered issues, but I'm sure others will, even if only to reprimand me for my comments!

    But socialisation is determined by both spoken and unspoken communication - the latter involving eye contact, facial expressions, speech intonation, nods and gestures. With autism the non-verbal element is always going to pose difficulties, but there may be ways of helping her compensate for this.

    And please NAS Moderators, isn't it time NAS took on a campaign about the woeful inadequacy of SEN staff in schools as regards autism. Time and time again we witness the most utter stupidity from these people, and nothing ever seems to get done about it.

    The qualification at teaching level is a teaching qualification, which by itself hardly touches on autism. Any direct knowledge dependes on the SEN undertaking research or postgraduate study, and that's probably few of them. With SEN assistants, their knowledge of autism is little if any.

    It is categorically wrong that the futures of children with autism should be placed in the hands of such ignorant and inadequately trained or qualified people.

Reply

  • Number 2 is a myth, and well.....what do you expect from an SEN person? These people seem mostly to have no training on autism yet pose as having expertise. Most seem worse than useless - like 19th century midwives and wet nurses, that lost many more babies than saved.

    What possible reason would there be for this being true? It probably relates to people on the spectrum not seeing a need to lie in social situations, or for political correctness or tact. But that refers to socialisation difficulties, not some magic reason for not lying at all.

    If anything the reverse is likely, for self defence.

    Mood things might be due to other factors such as bipolar. Do you mean that sometimes she is distressed, due to sensory issues, and at other times she is happy? It is more likely with autism that there are underlying factors that you could look out for and identify.

    Regarding 4, it is difficult to draw conclusions at the age of 6.

    I cannot comment on the other numbered issues, but I'm sure others will, even if only to reprimand me for my comments!

    But socialisation is determined by both spoken and unspoken communication - the latter involving eye contact, facial expressions, speech intonation, nods and gestures. With autism the non-verbal element is always going to pose difficulties, but there may be ways of helping her compensate for this.

    And please NAS Moderators, isn't it time NAS took on a campaign about the woeful inadequacy of SEN staff in schools as regards autism. Time and time again we witness the most utter stupidity from these people, and nothing ever seems to get done about it.

    The qualification at teaching level is a teaching qualification, which by itself hardly touches on autism. Any direct knowledge dependes on the SEN undertaking research or postgraduate study, and that's probably few of them. With SEN assistants, their knowledge of autism is little if any.

    It is categorically wrong that the futures of children with autism should be placed in the hands of such ignorant and inadequately trained or qualified people.

Children
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