During 2012, did you take part in ASD research at a London university?

[Note to moderator: I am a NAS member with AS seeking accounts from my fellow participants about a past/historic event. I've removed all references to identities of researchers and institutions. To be libellous, a statement must be both damaging and UNTRUE; so long as answers to this post from fellow participants are TRUE, they won't be libellous.]

In Summer 2012, a study was held at some premises of a northern London university. First, the study asked each participant (guided by the study’s Assistant) to provide First Aid to a mannequin which represented an imaginary casualty in a fantasy road accident. Later on, each participant was interviewed by the Principal Investigator about the First Aid given. In this post, I’ll call the study by the acronym LES.

I was one of the participants in the LES study. If you were also a participant in it, I’d like to know your answers to the few questions below - please number your answers correspondingly. From your answers, I hope to gain a sense of how my experience in the study was or wasn’t typical.

1. If choosing to take part in the LES study, participants were required to be interviewed later in the day about doing the First Aid task. Did you agree for the interview with you, furthermore, to be video-recorded? Yes/No

If yes, in how many research studies did you agree for that video to be used? 1 / 2 / 3+

2. If you agreed for the video to be used by only 1 study, was that only by the LES study (during which it was recorded) or only by a different planned study? LES study / planned study

3. Were you given a copy of the LES study’s Consent Form to take home with you? Yes/No

4. The room in which you did the First Aid task was located away from the main research laboratory/offices. On the outward journey, how many minutes were taken by you and the Assistant to get to it?

5. Between being interviewed (about doing the First Aid task) and your departure from the university, did anyone tell you surprising information about the First Aid task or about the room where you did it? Yes/No

If yes, what was the surprising information told to you?

6. The LES study’s Consent Form very briefly mentioned a different planned study by the same Principal Investigator. Have you ever been contacted since about that planned study? Yes/No

If yes, what were you told or asked about it?

7. Were you contacted later in the year 2012 by the LES study’s Assistant (whom had guided you in the First Aid task), asking if the videoed interview with you could be re-used in a new study of her own? Yes/No

If yes, did you agree or not agree to her request and what were your reasons?

8. At the end of the year 2012, the LES study’s Principal Investigator held (at the same university), a study which required participants to watch a video drama clip which depicted a mother supervising her adult daughter embarking upon a train journey; in the drama, next the mother hired a decoy taxi. Did you take part in this study? Yes/No

 

Parents
  • Seems to me that if you agreed to allow your responses to be recorded on video, and you agreed for that to be for ONE research study, the one you were on.....it is highly irregular if the researchers then pressed you for permission to use it in other studies.

    If you didn't complete a consent form, this research shouldn't have been undertaken. If you signed a consent form you are entitled to a copy.

    The significance of Questions 4, 5 and 6, and Question 8 still puzzle me, as an observer on this forum (having no involvement with the study). Perhaps the questions are too cryptic and to leading, for others who were involved to respond. They may have the same reasons as you gave to question 7.

    My question to NAS Moderators - are you able to take up with the research team concerned why there was no consent form used, as would appear to be the case here?

    Categorically, no research should be undertaken without a consent form. If this research was carried out under the auspices of a University, that question needs to be addressed to that University's Vice Chancellor. And until the matter is investigated all such research within that institution ought to be suspended.

    But that's just my opinion.

    To be honest university vice-chancellors seldom know what is going on in their universities, whether it is the quality of the research or the correct procedures, or the confidentiality and ethics - and for the astronomic salaries and perks involved, that's the real shame on universities.

Reply
  • Seems to me that if you agreed to allow your responses to be recorded on video, and you agreed for that to be for ONE research study, the one you were on.....it is highly irregular if the researchers then pressed you for permission to use it in other studies.

    If you didn't complete a consent form, this research shouldn't have been undertaken. If you signed a consent form you are entitled to a copy.

    The significance of Questions 4, 5 and 6, and Question 8 still puzzle me, as an observer on this forum (having no involvement with the study). Perhaps the questions are too cryptic and to leading, for others who were involved to respond. They may have the same reasons as you gave to question 7.

    My question to NAS Moderators - are you able to take up with the research team concerned why there was no consent form used, as would appear to be the case here?

    Categorically, no research should be undertaken without a consent form. If this research was carried out under the auspices of a University, that question needs to be addressed to that University's Vice Chancellor. And until the matter is investigated all such research within that institution ought to be suspended.

    But that's just my opinion.

    To be honest university vice-chancellors seldom know what is going on in their universities, whether it is the quality of the research or the correct procedures, or the confidentiality and ethics - and for the astronomic salaries and perks involved, that's the real shame on universities.

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