Why I didn't know I was autistic

I've been thinking recently about why I never thought I might be autistic until I reached my early fifties.

The first reason is that I didn't know what autism was, having grown up in the 1960s & 70s. I remember seeing "Rain Man" as a young adult, which is apparently what some people use as a stereotype for autism, but I just thought he was a savant. 

I thought I was just a "normal" girl and then a "normal" woman. As a child I didn't have any developmental delays. I slept well. I wasn't fussy about food. I was good at reading and spelling. I enjoyed books, art and crafts, music and dance, and loved animals. I had some friends. As a young adult, I liked being at home but did also like to see friends and occasionally go out for dinner or to the cinema or a concert. I didn't stim, I didn't have any obvious problems with eye contact. I didn't like school and was bullied for a while as a teenager, and as an adult I was manipulated by and had misunderstandings with friends and family, leading to breakdowns of some relationships, but I just thought that happens to everyone. I did always have trouble controlling my emotions and cried a lot - but I was just sensitive. We're all different - right?

So, what is it that makes me autistic?I

Here are some clues:

As a child:

I had an imaginary friend (and later, an imaginary horse)

I had gastro-intestinal problems from a very young age

My reading was so advanced I was probably alexythemic (but nobody knew what that was then)

My interest in horses was obsessive (I read everything I could find about them, drew them, collected models of them)

I taught myself to play guitar aged 11

My friend groups changed a lot over the years and I was generally not invited to parties, or even to other friends' homes - I mostly only mixed with them at school. It didn't bother me.

I preferred the company of younger children, and of adults, to kids my own age

At junior school one day, on observing the rough and tumble play and apparent lack of empathy of some other children, I wondered if I was the only real human and they were all robots.

Despite being fairly intelligent, I under-performed at school and didn't do well in exams.

I always suffered in cold temperatures (if I get too cold, it registers as pain)

As an adult:

I now realise I censored my conversations with other women to suit their interests: mainly talking about clothes, hairstyles, make-up, celebrities, popular tv programmes, etc. Not mentioning my interests in sci-fi, Stephen king novels, music, computer games, etc.  

I was always a "people pleaser" and I didn't know how to say "no" to a request, and ended up going to quite a lot of social events I didn't really enjoy.

I changed jobs a lot, due to problems with working relationships and feeling picked on by managers.

I've had lots of special interests over the years, including social sciences, food & nutrition and Interior design, and my main interests at the moment are reading fiction, computer games, and autism.

What were your "clues"?

Parents
  • This is so interesting. I just posted asking about female autism and diagnosis when I don't seem like the "stereotypical" autistic person. I'm not diagnosed so I'm not sure if my clues are even relevant lol but here goes:

    - Extreme "shyness" as a child to the extent that I sometimes just wouldn't reply when an adult asked me something (they called me ignorant); the head teacher of my primary school made a point of asking me why I was so quiet; and relatives commented on my quietness as a reason to not want me around.

    - total lack of social nous that persists to this day (aged 40)

    - Like you: reading ability that was off the charts, literally: was tested age 6 (might have been the 6 year net?) and my reading went beyond the diagnostic range which went up to 15.

    - very strong spelling and grammar abilities (which I have stopped being such a stickler about because I have become lazy in my old age, lol)

    - always loved to draw and paint realistic images. Some creative art work too. 

    - very strong fantasy life: interest in previous historical eras, buying vintage clothes, imagining myself to be a flapper or a hippie or whatever...

    - friends younger than me, some of whom (not that I have many) turned out to also be neurodiverse - I enjoy the company of autistic people because they talk about interesting things rather than engaging in small talk. 

    - no interest in small talk until very recently when I made the link between asking people about themselves,  and making friends. (Someone had to tell me that you need to ask people questions about themselves to show them that you like and are interested in them.)

    - friends and family called me things such as the ice queen, robot etc. For my seeming bluntness, insensitivity,  lack of emotion  etc when I thought I was just being honest and straightforward 

    - despite the above, I have always been very emotionally sensitive, felt the pain of the world etc., suffered depression,  very bad at regulating my emotions and being resilient, other than just shutting down emotions completely

    - I dislike dogs (sorry) because they stick their noses up your bum lol, intrusive sniffing, and their spit and bodies can smell really bad, and the smell gets onto you. 

    - intense dislike of bad smells haha. They make me angry.

    - obsessive picking of own skin, etc, smelling of things, sorry yuk.

    - obsessing about potential relationships etc., fantasizing, unable to have relationships in real life.

    - appearing immature or younger than my years. Dressing in clothes suitable for younger people.

    - I have children and really struggle with being climbed on, touched etc and asked illogical questions hahaha

    There's probably heaps more. I wonder if I really am autistic. There's a lady who produced an unofficial checklist of female autism and some of the above is from her list.

Reply
  • This is so interesting. I just posted asking about female autism and diagnosis when I don't seem like the "stereotypical" autistic person. I'm not diagnosed so I'm not sure if my clues are even relevant lol but here goes:

    - Extreme "shyness" as a child to the extent that I sometimes just wouldn't reply when an adult asked me something (they called me ignorant); the head teacher of my primary school made a point of asking me why I was so quiet; and relatives commented on my quietness as a reason to not want me around.

    - total lack of social nous that persists to this day (aged 40)

    - Like you: reading ability that was off the charts, literally: was tested age 6 (might have been the 6 year net?) and my reading went beyond the diagnostic range which went up to 15.

    - very strong spelling and grammar abilities (which I have stopped being such a stickler about because I have become lazy in my old age, lol)

    - always loved to draw and paint realistic images. Some creative art work too. 

    - very strong fantasy life: interest in previous historical eras, buying vintage clothes, imagining myself to be a flapper or a hippie or whatever...

    - friends younger than me, some of whom (not that I have many) turned out to also be neurodiverse - I enjoy the company of autistic people because they talk about interesting things rather than engaging in small talk. 

    - no interest in small talk until very recently when I made the link between asking people about themselves,  and making friends. (Someone had to tell me that you need to ask people questions about themselves to show them that you like and are interested in them.)

    - friends and family called me things such as the ice queen, robot etc. For my seeming bluntness, insensitivity,  lack of emotion  etc when I thought I was just being honest and straightforward 

    - despite the above, I have always been very emotionally sensitive, felt the pain of the world etc., suffered depression,  very bad at regulating my emotions and being resilient, other than just shutting down emotions completely

    - I dislike dogs (sorry) because they stick their noses up your bum lol, intrusive sniffing, and their spit and bodies can smell really bad, and the smell gets onto you. 

    - intense dislike of bad smells haha. They make me angry.

    - obsessive picking of own skin, etc, smelling of things, sorry yuk.

    - obsessing about potential relationships etc., fantasizing, unable to have relationships in real life.

    - appearing immature or younger than my years. Dressing in clothes suitable for younger people.

    - I have children and really struggle with being climbed on, touched etc and asked illogical questions hahaha

    There's probably heaps more. I wonder if I really am autistic. There's a lady who produced an unofficial checklist of female autism and some of the above is from her list.

Children
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