• Replies 3 replies
  • Subscribers 84 subscribers
  • Views 519 views
  • Users 0 members are here
Options
Related
Hints and tips
  • To quote someone's message, first select/highlight the relevant text, and then use the Quote button that appears
  • To "mention" someone, type @ followed by the start of the forum name, and choose from the list; that person will get a notification of being mentioned

Support for adults with Autism - specifically formerly classified as HFA/Aspergers - in the UK, is it getting better or worse?

NAS64261

A question to the round of readers in the UK with an official diagnosis/self-diagnosis/waiting diagnosis for Autism/ASD/HFA/Aspergers (I have after a very long wait been diagnosed as having ASD).

Do you feel that for you personally formal support has become better, worse, easier or harder to access? By support I mean understanding, tolerance, acceptance by colleagues, direct supervisors, managers, HR, job interviewers, PIP assessors, benefits deciders. I do not include informal support from friends, family, charities or your local community.

  

Parents

  • What support!?! I was diagnosed aged 50, 12 years ago and was offered nothing, just a group that met in a restaurant 20 miles away. There is/was a support group for adults in North Wales, but they were about as much use as a chocolate teapot, all they seemed interested in was if I was getting enough benefits. I asked for help navigating the digital world as my skills are very poor, I had a lovely chat with the woman on the phone and I thought she really understood me and my problems, then she said they'd put me on a course and I wouldn't have to worry about being in the same room as people because it would all be done via zoom. She was totally stumped when I told her I don't know how to do a zoom call and have neither camera, mic or speakers and I don't have a smart phone. After that she acted like a human google emailling loads of sites and web addresses for me to contact, many of whom I'd already contacted, most of them didn't opperate in Wales at all, let a lone in my bit.

    I'm lucky that I dont' work and so don't have to deal with the above people, I am quite good at self advocating and I did a whole seperate 2 sides of A4 for an Atos assessment, I have multiple health issues, so I worte about how they all gang up on me. Here is the nearest I've come to getting any support formal or informal.

Reply

  • What support!?! I was diagnosed aged 50, 12 years ago and was offered nothing, just a group that met in a restaurant 20 miles away. There is/was a support group for adults in North Wales, but they were about as much use as a chocolate teapot, all they seemed interested in was if I was getting enough benefits. I asked for help navigating the digital world as my skills are very poor, I had a lovely chat with the woman on the phone and I thought she really understood me and my problems, then she said they'd put me on a course and I wouldn't have to worry about being in the same room as people because it would all be done via zoom. She was totally stumped when I told her I don't know how to do a zoom call and have neither camera, mic or speakers and I don't have a smart phone. After that she acted like a human google emailling loads of sites and web addresses for me to contact, many of whom I'd already contacted, most of them didn't opperate in Wales at all, let a lone in my bit.

    I'm lucky that I dont' work and so don't have to deal with the above people, I am quite good at self advocating and I did a whole seperate 2 sides of A4 for an Atos assessment, I have multiple health issues, so I worte about how they all gang up on me. Here is the nearest I've come to getting any support formal or informal.

Children
No Data