Published on 12, July, 2020
Hi, I have just joined the group, and in need of some advice, a quick overview of what we have in place for my child so far
Henry is in Mainstream school with a 1:1 support teacher
he has a occupational therapist that visits him
he has a speech and language therapist
he’s been seen by the school child psychologist
he has just recently been given a EHCP, his needs are social, emotional and emotional dysregulation, which can result in outburst of anger towards his peers and teachers, hitting, kicking, throwing chairs and equipment
the last 2 years since Henry started in his reception class at school have been beyond stressful and upsetting, a constant battle between myself and the headteacher, staff and the school policies, as the school were not acknowledging or addressing his needs, it’s been a massive learning curve these last 2 years for the school as they were not exactly SEN friendly. I considered changing schools many times but Henry always wanted to go and he was forming friendships and a positive relationship with his 1:1 so he stayed.
we have been waiting for well over a year now to get an appointment for his initial social communication appointment to get a diagnosis, the letter arrived 5 days ago, I am now unsure if I want that official diagnosis, or as I call it “labelling”
I don’t want that officials diagnosis to potentially affect his life, as people can be prejudice and have misinformed views of what autism is
So I was hoping for advice whether I should or shouldn’t do it, and if any other parent is in the Same position ?? i have spoken to WESAIL, WISENDSS they have said it would work in Henry’s favour to do it, but im Still not 100% sure
thank you for taking the time to read my message
Lindsay
Yes, get him diagnosed and make sure you claim all the benefits that you can for him and put the money in a high interest savings account. Most of us are unemployed or underemployed. It is hard to get benefits as an adult. If you have any suspicions get him diagnosed and get all the money you are entitled to. DO NOT IGNORE THIS ISSUE.