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Thoughts on the pros and Cons of the passport / id schemes

magvi

With no disrespect to anyone

Do other people find they are not able to make use of all these prototypes of passport / ID schemes  . Or found they have been further targeted and had the information thats on them used against them or then limited further in life because people then only expect you to perform to what seems like a take away menu of negative traits that many of us do not even do. ? 

The first prototype used the words “This young person has been diagnosed” Not much use when you are over 30 and trying your hardest to get away from people assuming you are making things up or stuck in childhood, or that you took some kids pass.

 

The 2nd prototype used wording suggesting that I be excused from poor / difficult behaviour issues, when I do not exibit any of these. These phrases are an open invitation for ignorant prejudice opportunists who cause spectrum people barriers to use that as evidence against them e.g “See she is being difficult the card says that is what they do”.

 

 

In theory the idea  of an explanation pass is good but only if its pushed to a national validated scheme that issues something on plastic officially, in the form of a real photo card/ id which can only be obtained with some form of valid supporting application. This should come in a variety of formats to cover different kinds of spectrum issues rather than focus on the stereoptype one size suits all.

 

Something that reminds society it’s an offence to treat us with discrimination and outlining the main ways they misconstrue us not the other way around. The more we are labled as people who get everything wrong the more limited we become because that is all that is expected of us and I do not want a pass that writes me off in this fashion.

  The other reason I would find a pass useful is so that I am spared having to constantly prove at length and reprove my status all the time, and then have to outline other health conditions in detail to lay people, just to satisfy other people’s contempt disbelief ignorance.  This is the most debilitating degrading act to have to perform on a regular basis, no other disability group have to go through as much cross examinations over their disabled status as we seem to and yet we are the ones with a communicative disorder. 

 

 

Perpetrators who cause us already so much abuse, bullying, disbelief and injustice just use these take away menu's of negative traits, against us as a way to further gaslight us. Also they are always seemingly based on a narrow % of people not the whole rainbow, not to mention the divide between males and females. 

 

Abusive  perpetrators recite these things  “Ok hand flapper , are you about to have an episode better call someone so you can take your medication  Oh its time for her meltdown, was a bit too much information for her, no I didn’t abuse her she misunderstands peoples intentions gets things wrong”

 

 

There is a whole list of the things I do not respond well to, when I have to engage with society and its ignorance. Often I would rather hand a bullet point list of these issues over,in the hope that society make the adjustments to their behaviour when interacting with us.

 

For the record in response to example taunting comments above

( I am not actually on any psychiatric medication) I have no prejudice to those that are, but no pass should assume everyone is because society takes that as one meaning only.

 ( I can actually multi task and take in vast amounts of information)

I am none of the things trollers and bullies assume because they read lists even official places and services do the same, "YOU need to be more flexible, when looking for a more suitable flat"

Yes because if i was more flexible then i wouldnt notice the new damp moldy flat in a state of disrepair"

 

So in summary I repeat.

 I am fed up and sick of being represented as someone else, doing someone elses behaviours for someone elses reasons. The effect is that I am then being perceived by someone elses misunderstanding to only ever engage in the traits on that list. Aren't we all trying to get away from being misconstrued, misdiagnosed, and misguided?  Yes I would like a bit of plastic to spare me the above. 

Parents

  • I've seen one of these passports recently produced, the one jointly sponsored by NAS and the Clothworker's Foundation.

    It is good in that it recognises that autism manifestations are very widely variable.

    But that means that people consulting the passports have to read long lists, and may not understand the necessity. Particularly as this list includes things people may incline to interpret as commonplace - eg related to shyness, social phobia.

    Many people's reactions to these lists may not be as sympathetic as we would wish, particularly as the passport doesn't explain about the diversity of symptoms and why the detail is necessary.

    Also I don't think the lists are adequate. Take for example "How I like to communicate" - "face to face conversation" implies eye contact. There's nothing here about having difficulty with eye contact.

    I know, besides my own experiences, from interviewing others when I was advising students 'on the spectrum' I often found it best to sit so as to avoid direct face to face, so it was enabled by a voluntary turn of the head. Many people are calmer when not confronted head on. But its nowhere in this passport.

    It isn't just about reading body language, or "social nuances" (is there a glossary to go with this leaflet?), it is also about GENERATING the correct body language, facial expressions and vocal inflexions for others to read. Many people with autism have a blank or sad facial expression, or don't manage the right facial expression for the conversation they are attempting, or convey the wrong attitude, or appear rude. Where's that in the passport?

    Also proximity - both physical presence and from issues like smell, causes a lot of distress. And one of the really big issues, common in police stations and other official environment, several burly aggressive figures surrounding someone with autism and demanding answers doesn't help - no sign of it in this passport.

    The fact the passport needs long lists is a weakness. Not least because the need for long lists has meant some over-simplification to stop it being even longer.

    And if just the professionals had bothered to take this disability seriously.........

Reply

  • I've seen one of these passports recently produced, the one jointly sponsored by NAS and the Clothworker's Foundation.

    It is good in that it recognises that autism manifestations are very widely variable.

    But that means that people consulting the passports have to read long lists, and may not understand the necessity. Particularly as this list includes things people may incline to interpret as commonplace - eg related to shyness, social phobia.

    Many people's reactions to these lists may not be as sympathetic as we would wish, particularly as the passport doesn't explain about the diversity of symptoms and why the detail is necessary.

    Also I don't think the lists are adequate. Take for example "How I like to communicate" - "face to face conversation" implies eye contact. There's nothing here about having difficulty with eye contact.

    I know, besides my own experiences, from interviewing others when I was advising students 'on the spectrum' I often found it best to sit so as to avoid direct face to face, so it was enabled by a voluntary turn of the head. Many people are calmer when not confronted head on. But its nowhere in this passport.

    It isn't just about reading body language, or "social nuances" (is there a glossary to go with this leaflet?), it is also about GENERATING the correct body language, facial expressions and vocal inflexions for others to read. Many people with autism have a blank or sad facial expression, or don't manage the right facial expression for the conversation they are attempting, or convey the wrong attitude, or appear rude. Where's that in the passport?

    Also proximity - both physical presence and from issues like smell, causes a lot of distress. And one of the really big issues, common in police stations and other official environment, several burly aggressive figures surrounding someone with autism and demanding answers doesn't help - no sign of it in this passport.

    The fact the passport needs long lists is a weakness. Not least because the need for long lists has meant some over-simplification to stop it being even longer.

    And if just the professionals had bothered to take this disability seriously.........

Children
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