Help :(

Hi

Could someone please give me advice, I don't know what to do any more. I'm feeling very lost and alone. 

I'm trying I really am but nothing works. When I try to share about the autism no one understands and people give up. They think I'm rude and uncaring because I struggle to build conversation and to communicate. They always sit there and tell me what I need to do and say to build conversation and to build relationships but when I try to explain to them why I'm struggling with it, I'm told I'm just feeling sorry for myself.

Christmas was tough. My own family have rejected me so I was staying with my godmother, her whole family was over, I didn't know these people and they certainly didn't come to spend time with me. The noise was so crazy, I just had to excape and I think that was wrong somehow. And then Christmas lunch, I didn't think I was going to get through it. It was so loud and voices from every direction, it really hurt.

Why does my head hurt so much when I try to do conversation?

Why doesn't what's in my head come out correct or with the right words?

Yesterday we had made a plan that if there were no trains, my godmother would bring me home. She changed the plan and said I was to wait to today to get the train. Last night she said when would I be leaving and I said whenever, like whenever was suitable. I must have missed something because she turned not nice and went into the kitchen with her husband and started talking about me. When they came back in the room I went to bed and I got up and left the house. 

Now I don't know what to do.

I'm running on empty. Why do people just tell me all the things I do wrong? When will they say something nice? Why do they always want to pick a fight? Why do people even send horrible emails? Or call me a retard in the street? 

Why won't my brain work so people aren't angry with me? 

Parents
  • Sounds like your sensory difficulties have more to do with complexity, both visual and hearing, than just volume of sound.

    In the social gathering for christmas at your godmother's you say the voices were from every direction. So when in the centre of a social gathering you find it difficult when different sounds come from many directions.

    Are you any better staying to the side of a room with people in it, so the sound comes from one direction?

    Do you always have difficulty attempting conversation, or are there times when it is harder? Are you able to enunciate the words you intend when it is fairly quiet? Is it when there are a lot of other conversations around you, or other competing sounds that you find it difficult to form words reliably?

    When you say you are really trying and nothing works, when you are trying to share your autism, is that when talking to one other person quietly? Or is this in a situation where one or more people are having a go at you about your difficulties, asking for an explanation?

    When your godmother was suggesting changes to when you would travel, was this done quietly, or in confrontation, in an argument?

    These distinctions are important. If you are having difficulties even when things are quiet you may need help just to get from one day to the next. If however you get into difficulties when under pressure, too many other people talking at the same time, people confronting you etc. then you need to manage these events more carefully or avoid them if you are able.

    With the last part of your first posting, and your second posting you are describing people's reactions to you, which seem abusive and aggressive. It is important to think about the situations where this happens. If these events happen when you are going about quietly that suggests people are taking an issue with your appearance, with things you are passively doing that attract attention.

    If you are significantly affected by things going on around you, that you react by doing things you wouldn't normally do, people's responses might be to your reactions. Are they behaving like this because you are showing distress? Are your responses to people around you disturbing to these people that it causes them to react the way you do.

    You might be puzzled by all these questions, but if others are to help you unravel this, it is important that anyone else responding to your postings knows whether these things happen when you are not doing anything to draw attention to yourself, or when you are in otherwise quiet situations.

    Or, whether you are agitated or distressed when these things happen, and reacting in a way that causes others concern.

    Or that you are affected in this way when there is a lot going on, conflicting sounds and activities.

    If you could say a bit more about the situations you are in that would make it easier for others to offer advice. Sensory overload is a complex and very individual phenomenon, so everyone has different experiences of it.

    If you can give us more information about the circumstances when these things happen to you, others may be able to recognise and draw from their own experiences.

    I take IntenseWorld's point that people slamming their buggies into you might be aggressive chavs. But I'm just wondering if these are buggies used by elderly/disabled (like Shopmobility), or people who loads of money and just decide to drive buggies rather than walk? Or are these buggies push chairs with toddlers in them?

    As IntenseWorld says most mothers with push chairs are likely to be careful with the children in them

    But if we are talking about motorised buggies, they are aggressive to everyone. Nothwithstanding some users of motorised wheelchairs/scooters or "buggies" are responsible, but the majority of them are pavement hogs. Even some genuinely disabled users are like loonatics once behind the wheels of one of these. A very common injury is people getting their feet run over (as they are heavy and can injure).

    So please have a think about the various situations you are in, and gave us more to go on - we might be able to help more.

Reply
  • Sounds like your sensory difficulties have more to do with complexity, both visual and hearing, than just volume of sound.

    In the social gathering for christmas at your godmother's you say the voices were from every direction. So when in the centre of a social gathering you find it difficult when different sounds come from many directions.

    Are you any better staying to the side of a room with people in it, so the sound comes from one direction?

    Do you always have difficulty attempting conversation, or are there times when it is harder? Are you able to enunciate the words you intend when it is fairly quiet? Is it when there are a lot of other conversations around you, or other competing sounds that you find it difficult to form words reliably?

    When you say you are really trying and nothing works, when you are trying to share your autism, is that when talking to one other person quietly? Or is this in a situation where one or more people are having a go at you about your difficulties, asking for an explanation?

    When your godmother was suggesting changes to when you would travel, was this done quietly, or in confrontation, in an argument?

    These distinctions are important. If you are having difficulties even when things are quiet you may need help just to get from one day to the next. If however you get into difficulties when under pressure, too many other people talking at the same time, people confronting you etc. then you need to manage these events more carefully or avoid them if you are able.

    With the last part of your first posting, and your second posting you are describing people's reactions to you, which seem abusive and aggressive. It is important to think about the situations where this happens. If these events happen when you are going about quietly that suggests people are taking an issue with your appearance, with things you are passively doing that attract attention.

    If you are significantly affected by things going on around you, that you react by doing things you wouldn't normally do, people's responses might be to your reactions. Are they behaving like this because you are showing distress? Are your responses to people around you disturbing to these people that it causes them to react the way you do.

    You might be puzzled by all these questions, but if others are to help you unravel this, it is important that anyone else responding to your postings knows whether these things happen when you are not doing anything to draw attention to yourself, or when you are in otherwise quiet situations.

    Or, whether you are agitated or distressed when these things happen, and reacting in a way that causes others concern.

    Or that you are affected in this way when there is a lot going on, conflicting sounds and activities.

    If you could say a bit more about the situations you are in that would make it easier for others to offer advice. Sensory overload is a complex and very individual phenomenon, so everyone has different experiences of it.

    If you can give us more information about the circumstances when these things happen to you, others may be able to recognise and draw from their own experiences.

    I take IntenseWorld's point that people slamming their buggies into you might be aggressive chavs. But I'm just wondering if these are buggies used by elderly/disabled (like Shopmobility), or people who loads of money and just decide to drive buggies rather than walk? Or are these buggies push chairs with toddlers in them?

    As IntenseWorld says most mothers with push chairs are likely to be careful with the children in them

    But if we are talking about motorised buggies, they are aggressive to everyone. Nothwithstanding some users of motorised wheelchairs/scooters or "buggies" are responsible, but the majority of them are pavement hogs. Even some genuinely disabled users are like loonatics once behind the wheels of one of these. A very common injury is people getting their feet run over (as they are heavy and can injure).

    So please have a think about the various situations you are in, and gave us more to go on - we might be able to help more.

Children
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