Newly (working) diagnosed with a Universal Credit question

Hello all I am new here.

I am 42yr woman and have been given a working diagnosis of Autism and ADHD along various other things back in June. I am now on the 2-3 years wait for the official diagnosis.

I have been on Universal Credit for 'Agoraphobia' as that is what I thought I had (and slowly ruined my life for the past near two decades). Now I have the real reason (I had to put my foot down with the Mental health nurse and declare 'I know there was something else going on',) I am wondering if it is worth asking for a re-assessment due to the major difference.

I have been unemployed for the last decade and housebound in my parents house for over a decade due to this and working is nearly impossible for me (in any usual sense of the word). I am only getting the lower band of UC and terrified they see my 'agoraphobia' as treatable and still expect me to work. Yet due to this I have been unable to gain enough money to actually start to move my life forward.

I was wondering if everyone else is on the lower band or if it was worth seeing if I am eligible for the higher band. 

I am looking to finally move out and live by myself (having been accepted to the social housing lists in my county) yet I am finding it hard going on the lower UC (even with the little help from lower mobility PIP).


Thanks.


Parents
  • i dunno, they gave you diagnosis of autism and adhd already right though?

    but you want reassessed to remove the agoraphobia diagnosis? .... i think removing diagnosis will likely get you less rights if anything. i mean if they already gave you autism and adhd diagnosis you dont really need to remove the agoraphobia one, it will all stack.... really the more you have the more the job center will likely have to give some slack.

  • Thanks, sorry for the late reply. 

    I have a working diagnosis, but nothing formal. I am on UC as having agoraphobia and I am considering if it is worth having UC reassessed with this new diagnosis as well.

  • they wont give you any more for it but if you tell them they will likely not be on your case as much....

    even for reyanaurds syndrome that i didnt actually get formally diagnosed just my gp said i could have it, just by mentioning that i had the job center no longer try to force me into outside cold jobs or freezer food processing jobs. so they will cut slack on things based on these things you tell them.

Reply
  • they wont give you any more for it but if you tell them they will likely not be on your case as much....

    even for reyanaurds syndrome that i didnt actually get formally diagnosed just my gp said i could have it, just by mentioning that i had the job center no longer try to force me into outside cold jobs or freezer food processing jobs. so they will cut slack on things based on these things you tell them.

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