What support is there for those who are waiting for a diagnostic assessment?

Hi

I went to my GP and she signposted me to the autism service in my local area with a form to fill in. I sent the form off last night and now just waiting for them to reply as to whether I fit in their criteria or not.

Is there any support out there for those who are waiting for a diagnostic assessment? 

What did you do while waiting? 

  • Yeah, the same as there is for when you've got an assessment - none at all!

  • Autistic groups run by autistic people generally don't require diagnosis for you to go along to their events. See if you can find one locally.

  • I dont think there is any although I have just set up a grass roots peer to peer group - one from lived experiences and I can share the link if moderators allow. It is for those who have been taking psychiatric meds too.

  • Support? LOL! Are you kidding?

    In UK there is no support whatsoever. Go private or learn to enjoy your ASD.

  • I have been waiting for 5 years, I had the first half of my assessment many months ago now and my 2nd half isn't due until January/February time. I feel like I'm stuck in no man's land while waiting. I haven't found any support as yet as I constantly question how welcome I am autistic spaces without an official diagnosis. It's a difficult space to be in for sure. What I've done mostly is research and learn as much as I can as I felt that that is really all I can do.