I have a question for all you late diagnosed adult.....

I was diagnosed 2 weeks ago at the age of 31 and I definitely wasn’t expecting this huge sense of imposter syndrome! 

What  I find confusing is my issues didn’t really start to come to light until I was 17/18 and started having panic attacks (they generally happened in busy environments or around flashing lights). After that it was down hill from there and my ability to function just got worse and worse.

Prior to that though I was so good at hiding the things that made me anxious and I never really shared my emotions. I don’t recall having panic attacks and coped reasonably well with flashing lights etc. While especially in my teen years I always felt different for no particular reason, I still managed to get by with no obvious issues. 

I did stim as a child and teen but very subtly (scalp picking, picking the skin around my nails, swinging on chairs, smelling things, rubbing my feet together when in bed, dancing, moving about a lot etc) but as I went into adulthood and I became more educated about stims I definitely started doing more obvious stims (rocking, ticing, singing, swaying from side to side, rolling of the eyes, nose scrunching etc) I sometimes feel I started doing them due to being influenced. Yet I now can’t stop doing them because they make me feel so much happier. This whole thing is confusing to me. 

Why do you think a lot of adults who get diagnosed late seem to have got by with no obvious signs until something big happens to them as they get older? Why do you think as we get older we can’t seem to cope as well? I would love to know other people’s thoughts on this because it blows my mind that I had this my whole life yet managed to get by and function.....

Parents
  • 10-15 years ago, lighting really started changing from natural sources (filament heat inside halogens/incandescent) to far more unnatural lights: CFLs, LEDs. And while Fluorescents have been around for a while, they were usually tempered in shops or locations with natural lighting. For those of us with light sensitivity, it's become increasingly difficult to drive at night, go out at night, deal with shops without natural light. The change in society is forcing a biological response in those who feel attacked by these changes. And since covid, most public transport and station toilets have these installed lights which are absolutely blindingly painful.

    Society is changing and it isn't helpful for those of us with very sensitive sense-perception. There's also a noticeable change in sociological structures in the west. The guardian just released an article about behaviour at concerts: https://www.theguardian.com/commentisfree/2023/sep/14/behaviour-music-gigs-live-shows?CMP=fb_gu&utm_medium=Social&utm_source=Facebook&fbclid=IwAR3duCI9Ba-AZDryy2lnRdIJkJ_6i4dhn7gipz314BqgMXSNOgAMjMERuuI#Echobox=1694683181 I'd even be inclined to say there's an Americanisation of the West changing fundamental values on the whole. Humans can be easily influenced by what they're exposed to. To an extent. 

    So as you've been growing up, the world has been changing in ways that I believe are become much less easy for autistic thinking and being to inhabit. But, there's a few other factors. One is Autistics mature slower due to language differences. We don't use vocabulary as a fluid representation which is subject to change. In fact, we often rely on words having a stable function or underlying interpretation, and when they don't can be accused of being too pragmatic or worse, pedantic.This difference has an incredible impact psychologically on how most create Defence Mechanisms, which are an aspect of 'civilised behaviour' one matures into. If we were raised with good values in a supportive environment which didn't change, we may have felt acceptance to some degree, perhaps we were 'quirky but kind' and when peers have the time to get to know someone with - even middle class values, let's say - one might not think much of your differences. 

    But when there is sudden change, transitions in life, a great many things which once were overlooked may suddenly become noticeable. When I was younger I was taught that stress and hardship is where we learn much about ourselves. Or as one mentor said, the dark room is needed to reveal the image. 

Reply
  • 10-15 years ago, lighting really started changing from natural sources (filament heat inside halogens/incandescent) to far more unnatural lights: CFLs, LEDs. And while Fluorescents have been around for a while, they were usually tempered in shops or locations with natural lighting. For those of us with light sensitivity, it's become increasingly difficult to drive at night, go out at night, deal with shops without natural light. The change in society is forcing a biological response in those who feel attacked by these changes. And since covid, most public transport and station toilets have these installed lights which are absolutely blindingly painful.

    Society is changing and it isn't helpful for those of us with very sensitive sense-perception. There's also a noticeable change in sociological structures in the west. The guardian just released an article about behaviour at concerts: https://www.theguardian.com/commentisfree/2023/sep/14/behaviour-music-gigs-live-shows?CMP=fb_gu&utm_medium=Social&utm_source=Facebook&fbclid=IwAR3duCI9Ba-AZDryy2lnRdIJkJ_6i4dhn7gipz314BqgMXSNOgAMjMERuuI#Echobox=1694683181 I'd even be inclined to say there's an Americanisation of the West changing fundamental values on the whole. Humans can be easily influenced by what they're exposed to. To an extent. 

    So as you've been growing up, the world has been changing in ways that I believe are become much less easy for autistic thinking and being to inhabit. But, there's a few other factors. One is Autistics mature slower due to language differences. We don't use vocabulary as a fluid representation which is subject to change. In fact, we often rely on words having a stable function or underlying interpretation, and when they don't can be accused of being too pragmatic or worse, pedantic.This difference has an incredible impact psychologically on how most create Defence Mechanisms, which are an aspect of 'civilised behaviour' one matures into. If we were raised with good values in a supportive environment which didn't change, we may have felt acceptance to some degree, perhaps we were 'quirky but kind' and when peers have the time to get to know someone with - even middle class values, let's say - one might not think much of your differences. 

    But when there is sudden change, transitions in life, a great many things which once were overlooked may suddenly become noticeable. When I was younger I was taught that stress and hardship is where we learn much about ourselves. Or as one mentor said, the dark room is needed to reveal the image. 

Children