Autism Awareness - funded research

The Government has provided £0.5 million to 8 research initiatives to advance autism awareness.

Seven of the 8 (according to the NAS website under:the autism strategy an overview - autism awareness and training - government commissioned autism awareness training) have produced outcomes of various kinds.

The eighth is NAS which just gives a link back to the page explaining the autism strategy.

NAS is the one heading up the PUSH FOR ACTION campaign. What was the NAS funded research outcome, and why is there nothing set against the NAS contribution in that part of the website?

The Royal College of Psychiatrists and British Psychology Society seem to have produced E-learning packs which as yet I haven't found a way into to find out what they say - I probably have to buy one to see what its about.

Oxford University interviewed 37 people on the spectrum and other groups of parents, siblings and grandparents. Not altogether clear what they found out. Skills for Health/Skills for Care carried out widespread consultation, whatever that means in practice? But they all have something allegedly productive to say, except NAS.

Parents
  • I have asked several of the funded institutions and one has replied that they did make their E-Learning available for a year but because of the cost of supporting E-Learning asked the Department of Health to pay for it which they declined to do. So the package while free to their members can be purchased by outsiders for £35.

    So I guess its down to money. Evidently the original funding didn't cover the cost and there's no more in the kitty. At least it was available for year (to anyone who knew about it?). And while it wasn't obvious from their website it is still purchasable.

    But the beneficiaries of these projects, supposedly, were people on the spectrum, for whom having better informed public services would have made a difference.

    Frankly there's little sign of better informed public services.

    I think the autism community have been badly let down and the reality of the Autism Strategy may be little change if any.

    And I wish NAS would comment instead of ignoring this and hoping I'll go away.

Reply
  • I have asked several of the funded institutions and one has replied that they did make their E-Learning available for a year but because of the cost of supporting E-Learning asked the Department of Health to pay for it which they declined to do. So the package while free to their members can be purchased by outsiders for £35.

    So I guess its down to money. Evidently the original funding didn't cover the cost and there's no more in the kitty. At least it was available for year (to anyone who knew about it?). And while it wasn't obvious from their website it is still purchasable.

    But the beneficiaries of these projects, supposedly, were people on the spectrum, for whom having better informed public services would have made a difference.

    Frankly there's little sign of better informed public services.

    I think the autism community have been badly let down and the reality of the Autism Strategy may be little change if any.

    And I wish NAS would comment instead of ignoring this and hoping I'll go away.

Children
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