I've been given a non-diagnosis by HEALIOS, what do I do now?

Hi 

I'm a 24 year old cis-female. I was referred to Healios by my GP for ASD assessment after asking for an ADHD assessment (still on NHS waiting list). 

Process was very quick from referral to the final report but I was given no diagnosis for ASD. I scored more than triple the threshold on the RAADS-R screening but hit non of the markers for the DSM-5. This is incredibly frustrating and now I feel like I'm back to square one.

I was unable to speak to my parents or use them as informants as I'm no contact with them. 

I had an appointment with Healios on Tuesday to discuss the outcome of my assessment. 

My assessor told me that although I show a lot of autistic traits and scored 204 on the RAADS-R screening, I hit none of the markers for the DSM-5. She told me that my experiences in childhood and adolescence (neglectful & abusive parents, moving during adolescence, abusive and manipulative relationships, being 'quirky') could be a cause of my current behaviours and traits, and while I don't disagree that I hold a lot of unresolved trauma, I don't necessarily agree that I'm not autistic. She also told me that my experiences point towards ADHD and she's mentioned this in my report to pass on to the ND team I'm working with. 

I told her that I feel that I'm so efficient at masking that I've become a hindrance to myself. 

I understand co-morbidities and similarities between ASD and ADHD but I just feel like I've slipped through the net. 

Parents
  • Hi Darcie.  Do you have a full list of your symptoms and identified which of those fall within which diagnosis.

    I am waiting for my autism assessment, but i am aware that i have some issues due to childhood emotional neglect, some that are specifically autism and some that could be either.

    Perhaps listing out all of your behaviours and identifying what you believe is the cause and why, would be beneficial to you and any assessor?

    For example my sensory issues are not due neglect, but could be autism.

    My inability to emotionally bond could be either.

    The above are broad examples, i suggest you be as specific as possible.

Reply
  • Hi Darcie.  Do you have a full list of your symptoms and identified which of those fall within which diagnosis.

    I am waiting for my autism assessment, but i am aware that i have some issues due to childhood emotional neglect, some that are specifically autism and some that could be either.

    Perhaps listing out all of your behaviours and identifying what you believe is the cause and why, would be beneficial to you and any assessor?

    For example my sensory issues are not due neglect, but could be autism.

    My inability to emotionally bond could be either.

    The above are broad examples, i suggest you be as specific as possible.

Children
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