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IBS and Autism

NAS86320

Hi everyone, I am 50 and was diagnosed in January with Autism and ADHD, I am not getting any professional support, where do you all get support from? I also have IBS which I am learning is very common in people with Autism, it is particularly bad at the moment, probably the worst its ever been. I have started to follow a FODMap and take Immodium every day! Ho do you all deal with it?

Parents

  • I did the fodmap elimination and reintroduction and found I have a mild sensitivity to polyols so I no longer eat them. Fructrans, fructose and GOS are no problem for me.

    The biggest difference for me was adopting a low fiber, low fat diet. I eat a lot of white bread, white rice, white pasta, some very thoroughly cooked veg, orange juice, and a lot of soy milk and tofu for protein and fats. If I keep fiber intake below 25g a day it slows my system down enough to be manageable.

    I also take immodium a few hours in advance if I'm going somewhere with no toilet access.

    IBS is the diagnosis I have (i.e. all the tests came up negative so that's what we'll call it) but I don't like it. My bowel isn't irritable. It's been extremely consistent every day since I was born in that it simply runs several times faster than it should.

    I get no professional support. I manage my IBS through systematically experimenting with diet and medication and get peer support from fellow autistics from a local group.

Reply

  • I did the fodmap elimination and reintroduction and found I have a mild sensitivity to polyols so I no longer eat them. Fructrans, fructose and GOS are no problem for me.

    The biggest difference for me was adopting a low fiber, low fat diet. I eat a lot of white bread, white rice, white pasta, some very thoroughly cooked veg, orange juice, and a lot of soy milk and tofu for protein and fats. If I keep fiber intake below 25g a day it slows my system down enough to be manageable.

    I also take immodium a few hours in advance if I'm going somewhere with no toilet access.

    IBS is the diagnosis I have (i.e. all the tests came up negative so that's what we'll call it) but I don't like it. My bowel isn't irritable. It's been extremely consistent every day since I was born in that it simply runs several times faster than it should.

    I get no professional support. I manage my IBS through systematically experimenting with diet and medication and get peer support from fellow autistics from a local group.

Children
  • in reply to HP35

    I have just started a FodMap diet, I don't eat white pasta, white rice, white bread or anything like that. I don't eat spicy, fried or high carb food, so I don't have that much to cut out really. I don't have milk, I have soya milk, don't drink caffeine..I have to take immodium everyday.