Autism assessment

I will keep this brief but I was diagnosed as not autistic. Here’s why....

good eye contact despite struggling (can only keep eye contact in one eye)

good childhood apparently, loved school....had friends. perfectly normal apparently according to my mum (I wasn’t)

I don’t flap my hands or dance in circles. I do other stuff

i didn’t notice pictures that were not straight in room

didnt talk excessively about special interests (I don’t want to bore people)

can communicate well, when people are asking my questions 

I had friends but can’t maintain them now don’t want any.

can play football

despite struggling with a raft of problems since I can remember. I was just told......your not autistic. Goodbye

i very well may not be autistic but......I feel they were looking for an extreme case. I hide my stuff well and had to too survive. 

I just feel like I’ve been given no help and just basically told, yeah....you’re just not very good at stuff and maybe it’s trauma? I felt different since a kid and this was brushed off. Rant over.

anyone else had something similar?

Parents
  • My then teen daughters assessment outcome was the same. I always bleat on about it on here. We were just dismissed, even though it was blatantly obvious. I can’t describe how deflated my daughter was, and how her mental health went on a sharp, serious decline. And for me, I was numb, as I’d fought for years to get the assessment in the first place. They made me feel like I was a lair, and had exaggerated her symptoms. 
    They knew I’d realised I was probably autistic at this point, and had the cheek to write me a ‘report’ at the same time they gave me hers! I wasn’t even being assessed! Basically, I can’t read it because it makes me feel angry, but she read it to me at the time. I remember a little. Basically I was fine, certainly not autistic, people were jealous of me because of how I look, hence the bullying behaviour I’d experienced, and because I came from an abusive home as a child, I just have trauma. I don’t give eye contact because I led a sheltered life. Wow. So true….not!

    So, for you, I would assume you are autistic. You know you are anyway! You don’t need a professional to tell you that, but you do need a professional to recognise that, and diagnose you. I don’t know if you gave them things to read, covering all aspects of how you are affected? All the situations and experiences you’ve had. Because asking questions suited to a young male is not going to highlight anything, or make them aware of the steps you go through to hide and blend in. 

    Think about a second opinion, but ultimately just seek out a private clinic where they, or one of the clinicians specialise in adult autism, or ‘special cases’ where they need better insight to look for the subtleties.

    My blood is boiling for you as well as everyone else who keeps experiencing this s***!!

  • Thanks for the reply. Very similar to me. I will likely save up for a private consultation. It will be worth it otherwise I will spiral and just think about this until it’s resolved.

    wish they never mentioned it but glad someone did as my life has been easier for me and my family with autism when I read up on it.

    it explains a lot
    To say now I’m just ‘a bit traumatised and sensitive’ is just a kick in the nuts.

    I must say, at one point the assistant assessor actually fell asleep during my questionnaire/assessment. Unbelievable 

  • Fell asleep! What?

    I'd complain. If they fell asleep because they were perhaps unwell, they should have halted the proceeding, apologised to you and rearranged.

    How can a person to fell asleep have any view one way or the other as to whether you are autistic? I would complain about that.

    That is certainly a reasonable reason for them to run the assessment again.

  • It was the assistant not the assessor. I’m done now with the nhs and will be seeking someone who knows what they are doing.

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