Hello my name is Tanaya I'm 24 and I'm writing this on behalf of my partner Amy who is also 24. Amy has struggled ever since she was younger but were more focused on how Amy is now. We've been advised to check this website out as we've heard some really good things about it and could do with some advise or help with Amy at this time. Amy is having a lot of problems with the NHS and gp. she was told for about 6 months they had put 2 separate referrals through for her being ADHD and autism. we would constantly call gp and the specialist line to see what was going on and Amy was getting told loads of different answers by different care people which you could imagine is overwhelming for Amy and made her have this very bad states. Amy was then told the autism referral never went through, even though they told her for 6 months that it had. This made Amy have a lot more bad states. Amy would be pasting up and down the room playing with fidget toys and seeing her mind going 1000 miles ahead of herself. amys care plan was to ring 111 option but we just keep getting advised to speak to gp.
Routine is very important to Amy, things have to be done or started at set times, If someone is meant to arrive at amys lets say by 6:30 and they didn't arrive till 6:50, this sets Amy off due to it being change or out or routine. Amy has been given a sensory check list to complete and has to wait till the gp next call her and then they will be assessing to send a referral for Amy. for example Amy was dying her hair and got hair dye all over her which made Amy panic as she hated it having all over her
if you guys have any advise of how I can help Amy while she goes through this long period of wait that would be grateful to how to help Amy
Amy struggles with
Loud noises, busy places, change of routines/plans, bright lights, certain textures (that will make her just freeze) being touched or going near her when she's in a state
Amy loves
routine, set times, her music, ear defenders, sensory stuff
I don't know if we can reply to comments but if we can then I will reply with any questions too
Thank you
