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Should I try to get my assessment sooner?

BlueDalmatian

Hello, everyone

I’ve been on the waiting list with my local ASD service (after being referred directly to them rather than going to a GP first) for about 15 months; I was told I was prioritised due to my age (I was 17 when we started after a false start many years prior), and we were told that I’ll ‘age out’ of the adolescent system at the age of 18 and 6 months, which has happened. 

One of the main motivators, apart from not wanting to leave it any later than I needed to as I got older and closer to being away from the safety net of school and college, is to have everything in place for when I started university in mid-late September. And, as well as being ‘technically’ too old to be on the adolescent list (which I’m waiting to be notified of), and, after a bit of digging, finding out that the average wait time for my local authority’s service is 18-24 months, it’s now getting to the stage where it’s getting close to my A-Levels (so having anything happening in and around those dates would be absolutely nightmarish), and it’s also looking incredibly likely that I will start my university (who, thankfully, provide ASD accommodations to those still waiting for assessments, which is my saving grace here) without a diagnosis.  Plus, after meeting with a specialist disability team member of my prospective university, she recommended that I also apply for DSA; with being referred directly to the service, and not through a GP, as well as feeling as though I don’t have enough evidence to apply for and obtain any support that I may need (which I believe would be little-to-none anyway), I haven’t done that yet, so I’m also running out of time to apply for that, if I decide to opt for it. 

I don’t know if there’s anything I can do. I’m running out of time, in nearly every sense of it, and I can’t really action it quicker due to A) the risk of it clashing with A-Levels, which are utterly immoveable and B) the fact that, while the service provides a contact point, it’s only if my ‘situation has worsened’. Which it really hasn’t.

Any advice?  

  • You can either let them know a time period you can’t be assessed, or put it back further. Or, you could go private, which is faster.

    If you still get support without a diagnosis at uni, there is no issue. What is DSA? The only thing you claim for is PIP after diagnosis, but that is a very difficult and fruitless process. Especially when you are outwardly ‘capable’. The assessment process is awful.