Video assessment quandary ... plus 'I am not a number, I am (possibly) an autistic woman'

Hello NAS community ... After a while 'lurking' here since my initial query post over a year ago, I've finally just changed my username from the numerical auto-generated one NAS had branded me, so apologies this has taken me a while to muster. (Please also excuse my attempt at humour with my tenuous Prisoner reference!)

I want to say I've really appreciated you all. I've gained so much insight and increasingly identified with so much from avidly reading posts on here but hadn't yet had the courage or sense of validation to feel able to actively participate, due to the fact that I am still in the limbo of awaiting assessment as yet another female seeking a late diagnosis. Hence my provisional username, hopefully conveying my current pending state of being 'autist-ish'. (Though also in reference to my childhood nickname, Tish.)

Although I am very pleased to finally flesh out my identity here and join you all, I have to admit I do find expressing myself in writing, whilst being a preference for me, seems to take up a lot of my energy - swallowing time with a kind of compulsive hyperfocus, rewriting, writing excessively, overthinking etc. So all in all, I just don't know how consistently I will be able to actively contribute to the conversations without overwhelming myself, though I really do want to! It may be intermittent or in fits and bursts, or perhaps I will be able to restrain myself to at least pipe up to the conversations in a more regular, albeit minimal way. I suppose really, a virtual form of selective mutism, perhaps? Things may pan out very differently of course, should I receive a negative diagnosis. Nevertheless I just want to be open and give you all that disclaimer anyway ...

My assessment limbo of almost one and a half years has had some startling developments this week. I had plucked up the courage to at last email my assessment service to enquire, a) an estimate of what my position is on the waiting list; b) whether there is a possibility of taking any cancellations; c) confirm that I had not become lost in the system. I was anxious to ask them in case I was told "another 2 years or so plus", but to my shock, the reply I received was actually an upcoming appointment date for 25th April. However, my reaction has been mixed. I'm obviously feeling very fortunate and taken aback with relief it is now imminent, however my anxiety spiked upon reading it as I was not expecting it to be a 'virtual video call'. I personally struggle with video calls as the sense of disconnect etc. seems to affect my communication. I emailed them back today to explain this and ask if there is any possibility of a face to face appointment option, but that I understand if not or if this would mean much longer waiting times. They replied to say that, "[...]face to face appointments are available but are very limited[...]" and that I could cancel my virtual appointment to wait for one to come up if I preferred. So, I'm now left with a quandary. I have no indication how this limited availability translates - would this be months, a year even? Should I just accept this very fortunate appointment I've been given, despite my reservations with the anxiety and discomfort of video calling? Would this help or hinder me, I wonder, in terms of masking (which, as a late diagnosis seeker, is very well cultivated!)

I hope you can offer some insight or advice on what to do, or maybe what you would do in this situation. 

Once again, pleased to finally join you and thank you for listening.

Parents
  • Hi! I probably also over-think/over-write comments. I also don’t have the time to follow and contribute to all the posts here. I just try to find a balance that works for me, although periodically I have to re-tune it as life circumstances change.

    I don’t have a clear answer to your question. I also struggle with video calls, but I had to have my assessment over video because it was during COVID. I can’t remember if I “warned” them that I might struggle with this. Personally, I would be tempted to take the call because that waiting list is awful, but I can see that it might add to your anxieties, especially if you’re afraid you will mask your autistic traits at the best of times. That said, your worries about seeming stilted and lacking spontaneity would probably make you seem more (stereotypically) autistic than less! But I agree with Martin that a good assessor will base their assessment on a lot more than just how you communicate in the assessment.

    I think the fact that the video call will be in your own home can help too. I would have had a very long journey to South London and back to be assessed had COVID not intervened.

    Also, good to find another Prisoner fan! Be seeing you!

  • Greetings Luftmentsch, thank you. Knowing others here over-think / over-write is a relief and I have gathered that this seems to be yet another manifestation of the autistic state of being!

    Like yourself, I think if I do go ahead with the video call, I will certainly let them know all my anxieties about the process as we start, as well as revealing my general fears of being able to express myself effectively under the live pressure of 'performance'. That should help me and hopefully also be informative for them.

    I am now leaning more and more towards the prospect of a video call. It is possibly that my overall anxieties regarding the now very real imminence of my assessment are feeding into my fears too - whether conducted online or in person ...

    Be seeing you Luftmentsch!

    P.S. I don't know if you are aware or have been, but I would recommend a stay in Pormeirion if you ever get the chance! We stayed in one of the unique buildings, the Bridge House. Having the gardens to yourself is quite the magical experience after all the day trippers have gone. Failing that, a day visit is worth it. We ended up buying our very own 'Rover' (in actuality a weather balloon) from the shop!

  • I would like to visit Portmeirion! I actually mentioned it to my fiancee a while back and we're thinking of going one day. She hasn't seen The Prisoner, but I mentioned it on my blog, which she reads, a while back and she was intrigued, so I'm hoping to show the series to her at some point.  When I mentioned the location was a holiday spot she googled it and thought it looked worth a visit even without the Prisoner connection. I guess we both love eccentric and old-fashioned places and things!

  • For what it's worth, both of my video assessments only lasted just over an hour as I think there was quite a lot on paper.

    Whilst the prisoner isn't one of my specialist interests, I did really enjoy watching it about 20 years ago and keep meaning to watch it again as I can't remember how it ends believe it or not! I absolutely love Portmeirion and was there for the second time last year but only been on day trips. Both times I've been fascinated/obsessed with the blue colour there...the really vivid one! I tried searching for it online as I need more of that blue in my life so  just wondering if anyone knows what it's called or even knows those colour numbers (hex, RGB etc)for it?

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  • For what it's worth, both of my video assessments only lasted just over an hour as I think there was quite a lot on paper.

    Whilst the prisoner isn't one of my specialist interests, I did really enjoy watching it about 20 years ago and keep meaning to watch it again as I can't remember how it ends believe it or not! I absolutely love Portmeirion and was there for the second time last year but only been on day trips. Both times I've been fascinated/obsessed with the blue colour there...the really vivid one! I tried searching for it online as I need more of that blue in my life so  just wondering if anyone knows what it's called or even knows those colour numbers (hex, RGB etc)for it?

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