Video assessment quandary ... plus 'I am not a number, I am (possibly) an autistic woman'

Hello NAS community ... After a while 'lurking' here since my initial query post over a year ago, I've finally just changed my username from the numerical auto-generated one NAS had branded me, so apologies this has taken me a while to muster. (Please also excuse my attempt at humour with my tenuous Prisoner reference!)

I want to say I've really appreciated you all. I've gained so much insight and increasingly identified with so much from avidly reading posts on here but hadn't yet had the courage or sense of validation to feel able to actively participate, due to the fact that I am still in the limbo of awaiting assessment as yet another female seeking a late diagnosis. Hence my provisional username, hopefully conveying my current pending state of being 'autist-ish'. (Though also in reference to my childhood nickname, Tish.)

Although I am very pleased to finally flesh out my identity here and join you all, I have to admit I do find expressing myself in writing, whilst being a preference for me, seems to take up a lot of my energy - swallowing time with a kind of compulsive hyperfocus, rewriting, writing excessively, overthinking etc. So all in all, I just don't know how consistently I will be able to actively contribute to the conversations without overwhelming myself, though I really do want to! It may be intermittent or in fits and bursts, or perhaps I will be able to restrain myself to at least pipe up to the conversations in a more regular, albeit minimal way. I suppose really, a virtual form of selective mutism, perhaps? Things may pan out very differently of course, should I receive a negative diagnosis. Nevertheless I just want to be open and give you all that disclaimer anyway ...

My assessment limbo of almost one and a half years has had some startling developments this week. I had plucked up the courage to at last email my assessment service to enquire, a) an estimate of what my position is on the waiting list; b) whether there is a possibility of taking any cancellations; c) confirm that I had not become lost in the system. I was anxious to ask them in case I was told "another 2 years or so plus", but to my shock, the reply I received was actually an upcoming appointment date for 25th April. However, my reaction has been mixed. I'm obviously feeling very fortunate and taken aback with relief it is now imminent, however my anxiety spiked upon reading it as I was not expecting it to be a 'virtual video call'. I personally struggle with video calls as the sense of disconnect etc. seems to affect my communication. I emailed them back today to explain this and ask if there is any possibility of a face to face appointment option, but that I understand if not or if this would mean much longer waiting times. They replied to say that, "[...]face to face appointments are available but are very limited[...]" and that I could cancel my virtual appointment to wait for one to come up if I preferred. So, I'm now left with a quandary. I have no indication how this limited availability translates - would this be months, a year even? Should I just accept this very fortunate appointment I've been given, despite my reservations with the anxiety and discomfort of video calling? Would this help or hinder me, I wonder, in terms of masking (which, as a late diagnosis seeker, is very well cultivated!)

I hope you can offer some insight or advice on what to do, or maybe what you would do in this situation. 

Once again, pleased to finally join you and thank you for listening.

Parents
  • Hi, I can relate as I am also a female seeking late diagnosis, my appointment is in 2.5 weeks, but I am quite happy to have it online, that's what I wanted.

    I would tend to think they ought to be able to still identify you as autistic over a video call, especially if you warn them you are not comfortable with it. And trying for a face to face could well lead to a much longer wait. But if you think the video call makes you mask more then it would be a worry. I guess for this the real question is would the video call make you seem more or less autistic than the face to face! I'd be surprised if it made you seem autistic if you weren't though, if that makes sense?

    If it's more that you are worried about surviving the anxiety of it, at least you are in your own home, and they ought to be OK if you had to ask for a break to recover. Make sure you don't have too much other stress the couple of days before and after if possible, and have something you find soothing close at hand.

    But as I haven't yet had my assessment I am in no place to advise really, just wanted to try to help, hopefully someone more useful might weigh in.

  • Hi Triker, thank you so much for taking the time to respond. You've given me some new perspectives to consider so that's really helpful.

    I think my struggles with video calls are based with the altered dynamic where I think there is probably even more of a reduction in the ability to gauge those subtle micro cues when you are interacting with someone. Akin to phone calls in a way I suppose. Possibly to do with the disconnect and the restricted gestures? However that is based only on my experience with video calls with friends/family which are informal and sociable in nature, where the 'spontaneity' and flow seems to be affected and I feel 'stilted', even more unsure of when to interject, not talk over someone etc. A more structured, formal dynamic such as an assessment may not present these difficulties in the same way perhaps ...

    May I ask what makes you prefer to have yours by video call please?

    I wish you all the best with your upcoming assessment and thanks once again.

Reply
  • Hi Triker, thank you so much for taking the time to respond. You've given me some new perspectives to consider so that's really helpful.

    I think my struggles with video calls are based with the altered dynamic where I think there is probably even more of a reduction in the ability to gauge those subtle micro cues when you are interacting with someone. Akin to phone calls in a way I suppose. Possibly to do with the disconnect and the restricted gestures? However that is based only on my experience with video calls with friends/family which are informal and sociable in nature, where the 'spontaneity' and flow seems to be affected and I feel 'stilted', even more unsure of when to interject, not talk over someone etc. A more structured, formal dynamic such as an assessment may not present these difficulties in the same way perhaps ...

    May I ask what makes you prefer to have yours by video call please?

    I wish you all the best with your upcoming assessment and thanks once again.

Children
  • That's certainly a good thing that you have the option for the online format then. I know I'm viewing it from another side completely, but hearing your reasons, I'm sure there are many others who would prefer to. It would be ideal if everyone was given the choice.

  • I have several reasons to prefer video call.

    Firstly I am still not doing in person due to wanting to avoid long covid, as my physical disability was probably triggered by flu so covid may re-trigger that, or something else, and I don't have enough energy as it is.

    Second also my physical disability, in person would mean having to travel, find somewhere to park, find where I need to be which might be a longer walk, or up stairs and I hate lifts, then be in an unfamiliar environment which may not be physically comfortable, for several hours during which I will become exhausted and then have to get home after - so many reasons why that would be just really off-putting to me.

    Third, I am quite comfortable on video calls as I do language learning lessons on video, and video chat with my Dad and with friends so by now I am possibly more used to that than face to face!

    Fourth, as Catlover said, I will be in the comfort and familiarity of my own home. I use a laptop so I can do video calls from my bed! As the assessment is 3-4 hours, I know I will be exhausted before it ends so not having to sit up on a hard chair will conserve energy a little longer. And I can't forget to take anything with me! Or even if something came up in the course of the assessment, I might be able to find a thing to show them. I have access to food and drink which suits me that I don't have to plan ahead to take with me. I don't even have to get dressed if I'm having a bad day!

    Fifth it means I have access to an assessor anywhere in the country.

    All positives and zero negatives that I can see! But I know not everyone is the same.