Bad Assessment Experience

I have just come to the end of the NHS autism assessment process and I am incredibly frustrated. I was contacted yesterday to be told that I do not meet the autism criteria. 

For context, I am a young woman in a long term relationship, and the assessor took this is a sign that I can maintain relationships. I only have one friend who I struggle to keep in contact with. 

I felt ill prepared for the assessment, as I was not sent any prior documents preparing me for what we would discuss as they initially promised. It was hard to reach them beforehand as the system they used was not very easy to navigate. 

The assessment itself was very stressful, and I got to point where I struggled to answer the questions she gave me due to her responses feeling quite judgemental. It might have been a normal part of it but she kept saying things like "well all people feel like this" when I talked about some of my difficulties connecting with people in school and my preference of being alone, amongst over things I said. I struggled to give authentic responses to what she asked me. I ended up crying from the stress towards the end. 

My psychotherapist of 2 years, who has a lot of experience and knowledge working with autistic people, strongly suspects that I am autistic and even created a supporting statement for this.

As I said before, on the phone she said that I didn't meet the criteria for a few reasons, one of which stood out to me she mentioned was the maintaining relationships aspect and because of lack of routines (I do have routine, routine soothes me, I just struggled to think of an answer there because I was stressed). 

I feel very frustrating, and like she is going off some stereotypes. I have yet to receive the report but I am waiting to get that before I move forward wih anything else. 

Has anyone else had a similar experience? Is there a way I can redo this or anything I can do different moving forward? I am struggling to cope with life demands, particularly at work, and it feels like I am not going to have access to the support and accomodations I need for a while. 

Thank you in advance

Parents
  • That’s sounds like an appallingly outdated and cliched way to assess you, I’m very sorry you went through this when you were at your greatest need of validation. I’ve heard via this forum of a few such instances, and it’s nothing short of a disgrace. One person was told that because they could maintain eye contact they couldn’t possibly be autistic. You’ve been subject to similarly reductive thinking. I know it’s expensive, but a private diagnosis via someone who’s a bit more of the 21st century could be the way to go. Or… just trust your own strong feelings. Personally my lack of self-belief and reliance on external validation  meant that I needed that formal diagnosis, but it doesn’t have to be that way for everyone. 

Reply
  • That’s sounds like an appallingly outdated and cliched way to assess you, I’m very sorry you went through this when you were at your greatest need of validation. I’ve heard via this forum of a few such instances, and it’s nothing short of a disgrace. One person was told that because they could maintain eye contact they couldn’t possibly be autistic. You’ve been subject to similarly reductive thinking. I know it’s expensive, but a private diagnosis via someone who’s a bit more of the 21st century could be the way to go. Or… just trust your own strong feelings. Personally my lack of self-belief and reliance on external validation  meant that I needed that formal diagnosis, but it doesn’t have to be that way for everyone. 

Children
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