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"Autism is me": how autistic individuals make sense of Autism and stigma

Steven

"Autism is me": an investigation of how autistic individuals make sense of Autism and stigma


(Study by Monique Botha, Bridget Dibb & David M. Frost)

Points of interest:


* Autistic research participants consider Autism to be value neutral – akin to any other feature like race or hair colour.

* Participants feel that society sees Autism as being a bad trait to have.

* Participants struggled with the tension in how they see themselves, versus how they believe society sees them.

* Participants are caught between disclosing that they are autistic and concealing it, but feel they are treated negatively either way.

* Participants use the word 'autistic' to reclaim Autism from stigma, and to reframe people's understandings of Autism to be less negative.

More:

www.tandfonline.com/.../09687599.2020.1822782

Parents

  • I don’t actively tell people about me being autistic, as an older person I definitely won’t accept being stigmatised by it. I was born the way I am, I can be very abrupt, I can also be very caring. I’ve overheard negative comments from people, I don’t go in with,” I’m autistic ,” I will ‘bite’ now and explain to them what was incorrect in what they said. People can like or dislike me, it doesn’t matter to me, I enjoy my own company. There is an old song that I often think of.

    Well, I won't back down, no I won't back down
    You can stand me up at the gates of Hell
    But I won't back down
    Gonna stand my ground, won't be turned around…

Reply

  • I don’t actively tell people about me being autistic, as an older person I definitely won’t accept being stigmatised by it. I was born the way I am, I can be very abrupt, I can also be very caring. I’ve overheard negative comments from people, I don’t go in with,” I’m autistic ,” I will ‘bite’ now and explain to them what was incorrect in what they said. People can like or dislike me, it doesn’t matter to me, I enjoy my own company. There is an old song that I often think of.

    Well, I won't back down, no I won't back down
    You can stand me up at the gates of Hell
    But I won't back down
    Gonna stand my ground, won't be turned around…

Children
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