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Post diagnosis care

this_is_phil

Hello all,

I was diagnosed in November, and I had a series of follow up group sessions which were talking about what autism is and how it affects us. After that, however, there's not been anything from my GP or anything else, do I'm now just wondering if that's now it. It kind of feels like someone has handed me a spear, shown me how to stab things and then sent me of into the woods to see if I survive. Is that really it? Am I now on my own?

I suppose I just feel a bit lost at the moment. I know I have difficulties with things. I can now name why I have difficulties with things. But I just feel like I have no real way of managing those difficulties. I'm not even sure what I'm hoping to get out of putting this here either if I'm honest.

Parents

  • Yes sadly that was my experience too.... I was diagnosed a few months ago at age 25 and I thought I would maybe get access to some more specialised help, but there is nothing for autistic adults in my area- I basically just got the letter from the consultant and he did warn me not to expect anything  from GP ... and that was it.  I felt quite let down. I told my work and I got the 'everyone is a little autistic' response. I didn't know what adjustments I might benefit from so I didn't handle it well and I got no support at all...

    I am actually starting a PhD again so I'll be a student and I decided to tell the university and I actually had tears in my eyes when they were telling me about all the support I would be able to access (mentoring, social groups, a support document drawn up which is shared with relevant people). This was the first time my diagnosis allowed me to access more support. It's not right that there is nothing for adults. I really wish they would change that. 

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  • Yes sadly that was my experience too.... I was diagnosed a few months ago at age 25 and I thought I would maybe get access to some more specialised help, but there is nothing for autistic adults in my area- I basically just got the letter from the consultant and he did warn me not to expect anything  from GP ... and that was it.  I felt quite let down. I told my work and I got the 'everyone is a little autistic' response. I didn't know what adjustments I might benefit from so I didn't handle it well and I got no support at all...

    I am actually starting a PhD again so I'll be a student and I decided to tell the university and I actually had tears in my eyes when they were telling me about all the support I would be able to access (mentoring, social groups, a support document drawn up which is shared with relevant people). This was the first time my diagnosis allowed me to access more support. It's not right that there is nothing for adults. I really wish they would change that. 

Children
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