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Post Diagnostic support meeting.

Bodhisattva- neil

Friday morning I have been invited to attend my first post diagnosis support meeting with the Bristol based Adult Autism Service. 
The appointment confirmation letter states, “ we can discuss what support is available ” and “ I can decide what support I would like.”

my diagnosis is fresh, I have not really come to terms with it. 
I’m still trying to understand everything. I haven’t worked out where I may need support. 

my question for you lot would is………  can anybody let me know what support was offered to you following your late diagnosis? 
I’m in a bit of a pickle because I’m worrying I will waste the opportunity if I can’t decide what I may need and what parts of my life can be supported. 

all comments are welcome 

N.

Parents

  • I went along to my post diagnosis support meeting, below are what I have been offered so. I have copied and pasted from an email 

    Things sound promising. Time will tell.

    Actions I have completed:
    >I have added you to the waiting list for our ‘understanding autism’ group and also for the ‘understanding anxiety’ group.
    >I have added you to the waiting list to meet with an Autism community link worker.
    >I have also added you to the mailing list, which will inform you in advance of what’s being held at the Create centre the upcoming Friday (e.g., groups, workshops).
    >I have also attached the ‘autism hospital passport’. If you’d like to fill this in and send it back to me, I can sort the rest and follow the steps so that this flags up if you ever go to hospital and staff will be more aware of your condition.

Reply

  • I went along to my post diagnosis support meeting, below are what I have been offered so. I have copied and pasted from an email 

    Things sound promising. Time will tell.

    Actions I have completed:
    >I have added you to the waiting list for our ‘understanding autism’ group and also for the ‘understanding anxiety’ group.
    >I have added you to the waiting list to meet with an Autism community link worker.
    >I have also added you to the mailing list, which will inform you in advance of what’s being held at the Create centre the upcoming Friday (e.g., groups, workshops).
    >I have also attached the ‘autism hospital passport’. If you’d like to fill this in and send it back to me, I can sort the rest and follow the steps so that this flags up if you ever go to hospital and staff will be more aware of your condition.

Children
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