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Post Diagnostic support meeting.

Bodhisattva- neil

Friday morning I have been invited to attend my first post diagnosis support meeting with the Bristol based Adult Autism Service. 
The appointment confirmation letter states, “ we can discuss what support is available ” and “ I can decide what support I would like.”

my diagnosis is fresh, I have not really come to terms with it. 
I’m still trying to understand everything. I haven’t worked out where I may need support. 

my question for you lot would is………  can anybody let me know what support was offered to you following your late diagnosis? 
I’m in a bit of a pickle because I’m worrying I will waste the opportunity if I can’t decide what I may need and what parts of my life can be supported. 

all comments are welcome 

N.

Parents

  • I did an online assessment which was from a private company but funded by the NHS.  They offered an online "support group" which ran once a week for six weeks.

    I was excited by the idea, but it just turned out to be someone reading off a PowerPoint at us for 45 minutes.  About a bunch of stuff I'd already learned in the years up to getting diagnosed.  The lady leading leading it said that she had to get through all the information, and there was very little time for any kind of discussion.  Also I had to correct them on a few things that they got wrong!

    It is still pretty fresh for me too, and a lot to process.  Hopefully when they give you options you'll know if it's right for your situation.  Unfortunately it seems that NTs and professionals don't always have the right ideas about what we actually need.

    Fingers crossed that it's helpful for you though.

Reply

  • I did an online assessment which was from a private company but funded by the NHS.  They offered an online "support group" which ran once a week for six weeks.

    I was excited by the idea, but it just turned out to be someone reading off a PowerPoint at us for 45 minutes.  About a bunch of stuff I'd already learned in the years up to getting diagnosed.  The lady leading leading it said that she had to get through all the information, and there was very little time for any kind of discussion.  Also I had to correct them on a few things that they got wrong!

    It is still pretty fresh for me too, and a lot to process.  Hopefully when they give you options you'll know if it's right for your situation.  Unfortunately it seems that NTs and professionals don't always have the right ideas about what we actually need.

    Fingers crossed that it's helpful for you though.

Children
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