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How did you cope with your diagnosis?

Jessica

Hello,

Another post I have just read inspired me to start a discussion about this. 

I've recently been diagnosed ASD. I thought I would be absolutely ecstatic with the diagnosis, finally having answers and reassurance. Actually, I have reacted the complete opposite! I feel it has consumed me, and it's all I think about. 

I want to know how other people have coped with their diagnosis, whatever it may be, and however long ago it may have been. Also, if you didn't cope well with it, how did you eventually start to feel better about it? I'm not sure whether to reach out to my boss and ask for some more regular coaching from a trusted colleague who I already go to for coaching once every 5-6 weeks for 1 hour. Does anyone think this may be a good idea? 

I feel this is a trusted space, and can't believe I've actually posted this and broke through a small barrier of my social anxiety! 

Parents

  • It’s very much been ups and downs for me, and I think it will be for a while! Had my verbal diagnosis just under 4 weeks ago and the official letter yesterday. 

    As I’ve written elsewhere here, spent a lot of time doubting the diagnosis and convincing myself that I’d done enough research prior to my assessment to convincingly fake it. Having it in writing seems to help with that though. 

    The main thing for me now is I’m also giving myself permission for things to bother me. I went to a museum a few weeks ago and the gallery I was in was getting pretty busy. Usually I would get irritated by the number of people, stomp off home and let it ruin my day. But on that day I put my headphones on, found a white noise track on my phone, and carried on looking at the exhibition. 

    I’m now in the wonderful world of “deconstructing the mask” and trying to work out who the “real me” is. Long way to go but good to have a resource like this where you know there are others going through similar things. 

Reply

  • It’s very much been ups and downs for me, and I think it will be for a while! Had my verbal diagnosis just under 4 weeks ago and the official letter yesterday. 

    As I’ve written elsewhere here, spent a lot of time doubting the diagnosis and convincing myself that I’d done enough research prior to my assessment to convincingly fake it. Having it in writing seems to help with that though. 

    The main thing for me now is I’m also giving myself permission for things to bother me. I went to a museum a few weeks ago and the gallery I was in was getting pretty busy. Usually I would get irritated by the number of people, stomp off home and let it ruin my day. But on that day I put my headphones on, found a white noise track on my phone, and carried on looking at the exhibition. 

    I’m now in the wonderful world of “deconstructing the mask” and trying to work out who the “real me” is. Long way to go but good to have a resource like this where you know there are others going through similar things. 

Children