• Replies 15 replies
  • Subscribers 87 subscribers
  • Views 2299 views
  • Users 0 members are here
Options
Related
Hints and tips
  • To quote someone's message, first select/highlight the relevant text, and then use the Quote button that appears
  • To "mention" someone, type @ followed by the start of the forum name, and choose from the list; that person will get a notification of being mentioned

How did you cope with your diagnosis?

Jessica

Hello,

Another post I have just read inspired me to start a discussion about this. 

I've recently been diagnosed ASD. I thought I would be absolutely ecstatic with the diagnosis, finally having answers and reassurance. Actually, I have reacted the complete opposite! I feel it has consumed me, and it's all I think about. 

I want to know how other people have coped with their diagnosis, whatever it may be, and however long ago it may have been. Also, if you didn't cope well with it, how did you eventually start to feel better about it? I'm not sure whether to reach out to my boss and ask for some more regular coaching from a trusted colleague who I already go to for coaching once every 5-6 weeks for 1 hour. Does anyone think this may be a good idea? 

I feel this is a trusted space, and can't believe I've actually posted this and broke through a small barrier of my social anxiety! 

Parents

  • Ha.. Good for you deserve good conversation and here you tend to get it!

    As far as post-diagnosis goes: I was ecstatic in the days following, but I’ve found you have to be careful to manage your expectation, as the resources can be lacking sometimes (even though it is getting better all the time). 

    As far as disclosure goes, it is worth letting the dust settle first I think, the typical world is little prepared to embrace the atypical.  
    That’s is not to say that your Boss will not be ecstatic. But I would work from: close relations and close friends, to distant relations and friends, to work and community (if you want to disclose at all). 

    As you say, you are in a trusted place for Autism conversation, so don’t feel as if you have to tell everyone straight away.  
    It is not uncommon to encounter a despairing-feeling if you encounter stumbling blocks, so feel free to feel out your ‘new’ life-long condition to your hearts content here, you will always find kinship and support here when you need it..:)

Reply

  • Ha.. Good for you deserve good conversation and here you tend to get it!

    As far as post-diagnosis goes: I was ecstatic in the days following, but I’ve found you have to be careful to manage your expectation, as the resources can be lacking sometimes (even though it is getting better all the time). 

    As far as disclosure goes, it is worth letting the dust settle first I think, the typical world is little prepared to embrace the atypical.  
    That’s is not to say that your Boss will not be ecstatic. But I would work from: close relations and close friends, to distant relations and friends, to work and community (if you want to disclose at all). 

    As you say, you are in a trusted place for Autism conversation, so don’t feel as if you have to tell everyone straight away.  
    It is not uncommon to encounter a despairing-feeling if you encounter stumbling blocks, so feel free to feel out your ‘new’ life-long condition to your hearts content here, you will always find kinship and support here when you need it..:)

Children
  • in reply to DeSpereaux
    DeSpereaux said:
    the typical world is little prepared to embrace the atypical.  

    I have never thought about this until now, but it is so true. On the flip side of that, I work with 4-5 year old children, and they are so accepting of everyone and everything. If some children are a bit different to them due to special needs, they see no difference at all. It's quite beautiful. It's such a shame that so many people grow to be so ignorant.