ADS Rights

Hello everyone,

I have a question for the community. As someone with Autism Spectrum Disorder (ASD), I have noticed that people with ASD often don't stand up for themselves like other minorities do. I wonder why this is the case?

We see people from other minorities fighting for their rights, making their voices heard, and advocating for themselves. However, I feel that this is not the case for individuals with ASD. We often keep to ourselves, avoid conflict, and are generally less assertive.

I believe that it is important for people with ASD to stand up for themselves and to advocate for their rights. This is not only important for our own well-being, but also for the betterment of society as a whole. We can't expect change to happen if we don't speak up take action that inpacts the system which keeps us in these chains ?

So, why do you think people with ASD don't stand up for themselves like other minorities? And what can we do to change this? I would love to hear your thoughts and opinions on this topic.

Parents
  • 'Autism has been pathologised as disease or disorder. However, autistic individuals do not typically understand themselves within a model of pathology. These views are often dismissed as autistic individuals are said to lack epistemic authority - that is, the ability to contribute to knowledge formation on Autism. Indeed, it has been argued that because autistic individuals are autistic, they lack the ability to produce reliable knowledge on Autism. Different ways of understanding Autism convey different levels of stigma, however. Autistic individuals tend to have a reliable and scientific understanding of Autism, which is also less stigmatising.

    The ‘autistic person’, is not a natural category; instead it came into existence as a psychiatric diagnosis. Autism has developed under technocratic power structures wherein the power to define the meaning of Autism has been held by non-autistic researchers and medical professionals. Autism has evolved from a form of mental-illness to a cognitive condition. Although there is currently an emerging focus on ethical, participatory Autism research, some research on Autism has traditionally excluded and dehumanised autistic individuals.'

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    ('"Autism is me": an investigation of how autistic individuals make sense of Autism and stigma' by autistic researcher Monique Botha, University of Surrey)

Reply
  • 'Autism has been pathologised as disease or disorder. However, autistic individuals do not typically understand themselves within a model of pathology. These views are often dismissed as autistic individuals are said to lack epistemic authority - that is, the ability to contribute to knowledge formation on Autism. Indeed, it has been argued that because autistic individuals are autistic, they lack the ability to produce reliable knowledge on Autism. Different ways of understanding Autism convey different levels of stigma, however. Autistic individuals tend to have a reliable and scientific understanding of Autism, which is also less stigmatising.

    The ‘autistic person’, is not a natural category; instead it came into existence as a psychiatric diagnosis. Autism has developed under technocratic power structures wherein the power to define the meaning of Autism has been held by non-autistic researchers and medical professionals. Autism has evolved from a form of mental-illness to a cognitive condition. Although there is currently an emerging focus on ethical, participatory Autism research, some research on Autism has traditionally excluded and dehumanised autistic individuals.'

    -----------------

    ('"Autism is me": an investigation of how autistic individuals make sense of Autism and stigma' by autistic researcher Monique Botha, University of Surrey)

Children
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