Undiagnosed and unemployed woman

Hey everyone,

I have always known or felt different to most people, ever since childhood. Friends or family feel that I don't seem to present myself as stereotypically autistic, and have always been told I look 'normal'. Regardless of this, I have had many troubles throughout life around socialising and with keeping jobs. My last job was Mental Health Support Worker, something I have always wanted to do but found it very uncomfortable after just 2 days of being there. My job before that I had for 4 months, and prior that a year. I have many gaps in my employment and I feel that its because I find it hard to not be able to be myself in a strict environment with many expectations, and sensory difficulties. I have tried to cut down full time to 24 hours before and that was still a struggle. I have some supportive friends, but my immediate family don't understand- which has made it all very isolating for myself. 

My main point being is that I feel that I cannot pursue work properly until I have some kind of support or validation, but until I do have a diagnosis I feel like I'm floating in between not sure what to do with myself.

Any advice on how I can help myself would be great- I feel that I cannot apply for PIP until I have had a diagnosis with the help of Psychiatry UK, which I will be following through with on Monday. I also am on a carers allowance for my mother in law, so maybe if I did try a 16 hour work week it would be best for me (to help me socially, structure routine, and of course financial help).

Thank you :)

Parents
  • Hello Shan, welcome to the forum.

    Nice positive start with the profile and all, try "aspergertestsite" for a self test that was very close to the official NHS test in my case, and will at least confirm whether you are on the right tracjk with this.

    I had to insist that my doctor do the test, as he thought I didn't present as Autistic/aspergers at all, in fact he gave me the impression he thought I was "trying it on", then when they quoted me some ridiculous time for the formal assessment I used the CCG (IIRC) complaints procedure, as I felt (Like you) that my life was on hold until I knew.

    And I followed up with the surgery and doctors to make sure that the paperwork was exchanged in a timely manner...

  • I can't understand why someone would think we're "trying it on" when there are pretty much no tangible benefits from being autistic!

  • Agreed !  This aspect wholly perplexes me about "normie" responses when I touch on my reality to them....but then again, I suppose this disconnect in perception rather underlines the point in our difference !!!

Reply Children
No Data