Oh dear….what happens if not diagnosed?

I had my assessment two weeks ago and my husband is to be ‘interviewed’ next week. What happens if the answer is no? No….you’re not autistic.  At the age of 69, where does that leave me? I’m getting so stressed about this. 

Parents
  • Personally, if my NHS assessment says I'm not autistic, I intend to continue to call myself autistic, continue to go to the autistic groups I've joined, and continue to live my life as an autistic person because it's working for me. I used to have meltdowns every week and hardly ever do now I've changed my lifestyle to accommodate my autism. Depending on cost I might pursue private diagnosis so I have it on paper in case I need accommodations in future.

    I know I'm autistic. It's possible that I won't be able to communicate well enough with the assessor to convince them of that (story of my life when seeking healthcare) but that doesn't mean my autism isn't real.

Reply
  • Personally, if my NHS assessment says I'm not autistic, I intend to continue to call myself autistic, continue to go to the autistic groups I've joined, and continue to live my life as an autistic person because it's working for me. I used to have meltdowns every week and hardly ever do now I've changed my lifestyle to accommodate my autism. Depending on cost I might pursue private diagnosis so I have it on paper in case I need accommodations in future.

    I know I'm autistic. It's possible that I won't be able to communicate well enough with the assessor to convince them of that (story of my life when seeking healthcare) but that doesn't mean my autism isn't real.

Children