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A Gap after diagnosis leaving me wondering if others experience this

A2049

Hi to everyone,

So I have been diagnosis as of September last year as ASC (autistic spectrum condition) and to be honest I feel a bit lost. I understand myself so much better being armed with this info, however i am  just sat thinking, now what? So i am unemployed and not educated but really want to better myself and move forward in a way so i am not bouncing back and forth between employment and unemployment. So my question is to others what did you do when you found out your diagnosis how did you move forward knowing this and what help is there as an adult, I am looking and in my area there is literally nothing. I don't want to ramble on to much, but just wanted to know what other people have done. As i would like to use this knowledge of my diagnosis as a positive thing (it is a positive thing) i dont know how to word what I mean.

Many Thanks

      

Parents

  • Sorry I can't really advise you, but I have also had the problem of bouncing back and forth between employment and unemployment. At the moment I'm not working and rely on top rate PIP for mobility and care. That runs out in 2 years and I hope to be working by then.

    Can you get an occupational therapist who can help with things like sensory problems and getting over stimulated in social situations? I've got one through my mental health team, as I also have mental health problems so I'm seeing the OT with the community mental health team while I wait for the OT who specialised in adults withy Autism. In my area adults with autism get 7 group sessions and access to a specialised occupational therapist.

    I was diagnosed about a month ago. Also with ASC. I prfer that to ASD as I don't see it as a disorder, condition is much nicer! It's given me permission to be the antisocial curmudgeon that I secretly have always been. Now if I can reduce my sensory problems and learn to function with NTs I might just manage to get this employment malarkay sorted. I can now justify time out to people when masking gets too much, which is great. 

  • in reply to BMF

    Hey thanks for replying I have just been discharged from my  local mental health team as of last year, I don't feel I need their help at the moment things are alright. I appreciate you sharing your experience with me. Honestly though the thought of applying for pip is just eurgh, I tried a few years back and scored 0 apparently according to the assessor who seemed to know more about myself than I. I was to in the throws of a dip in depression and just didn't have the  energy or capability to fight the decision, so I feel a bit funny about having to go through it all again. Work is a mind field isnt it, well navigating human beings is and all the brights lights etc etc. 

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  • in reply to BMF

    Hey thanks for replying I have just been discharged from my  local mental health team as of last year, I don't feel I need their help at the moment things are alright. I appreciate you sharing your experience with me. Honestly though the thought of applying for pip is just eurgh, I tried a few years back and scored 0 apparently according to the assessor who seemed to know more about myself than I. I was to in the throws of a dip in depression and just didn't have the  energy or capability to fight the decision, so I feel a bit funny about having to go through it all again. Work is a mind field isnt it, well navigating human beings is and all the brights lights etc etc. 

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