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Undiagnosed online communities

Allfunktup

I'm undiagnosed, and although everyone is lovely here on the forum  I'm still finding it hard not to feel like a tourist.  Some of the advice and suggestion from the forum have been very helpful, but I reluctant to really talk to people as I'm not really part of this.  It that normal?  I wanted to get to know other autistic adults, but I don't feel like I'm at a place in my lift where the stress of the diagnosis journey would be worth it.  Where I live the health services are so overwhelmed I'm not a priority, and rightly so.  If I was younger it would be amazing, but I've made it this far without it I thought I should stick to acceptance. But it seems to fit so I'm curious enough to break my isolation a little.

I joined a meet up group online for adult autistics, but the keep meeting up and having events like board games.  Are autistic people all good at board games? I never played any.  Does this mean I'm not autistic? The other one was some sought of meal and I hate eating out. I know it sounds stupid, but things like this just put me off reaching out.  On some level I knew there is a lot of diversity within the community, but I feel like I don't have a guest pass, and can't access it. Do any other undiagnosed people feel the same?

Parents

  • Hi! When I first joined this community I was not officially diagnosed and I knew almost nothing about autism- it was all very new to me- I had only just started reading about autism in women after someone suggested I could be autistic and it seemed to fit. I had lots of doubts and feelings of imposter syndrome initially and when I first joined this community I was also worried that it might not be ok ... because what if I wasn't autistic and I was intruding? But it is not like that at all!! Everyone is welcome here and I really hope you stay because this community is great  and connecting to other autistic people is great- it makes me feel less alone and also really helped me understand myself and grow more confident in my autistic identity. I am now actually officially diagnosed but I don't feel like I am any more or less a part of this community now. 

    There is so so much diversity among autistic people so it's not that you can't be autistic just because you don't have a trait that one other autistic person appears to have (like playing boardgames). I have to admit though I do like playing boardgames but so do plenty of other people, neurotypical and autistic and plenty of autistic people also don't like that. It's to be expected that at a group meeting that centers around playing boardgames, most people that go there like playing them... !! 

    I can very much relate to not being able to eat out- I can't eat socially at all at the moment... 

    I really hope you stay on this forum. I can relate to your feelings as I felt similarly when I first joint but please believe me that you are more than welcome here!! 

Reply

  • Hi! When I first joined this community I was not officially diagnosed and I knew almost nothing about autism- it was all very new to me- I had only just started reading about autism in women after someone suggested I could be autistic and it seemed to fit. I had lots of doubts and feelings of imposter syndrome initially and when I first joined this community I was also worried that it might not be ok ... because what if I wasn't autistic and I was intruding? But it is not like that at all!! Everyone is welcome here and I really hope you stay because this community is great  and connecting to other autistic people is great- it makes me feel less alone and also really helped me understand myself and grow more confident in my autistic identity. I am now actually officially diagnosed but I don't feel like I am any more or less a part of this community now. 

    There is so so much diversity among autistic people so it's not that you can't be autistic just because you don't have a trait that one other autistic person appears to have (like playing boardgames). I have to admit though I do like playing boardgames but so do plenty of other people, neurotypical and autistic and plenty of autistic people also don't like that. It's to be expected that at a group meeting that centers around playing boardgames, most people that go there like playing them... !! 

    I can very much relate to not being able to eat out- I can't eat socially at all at the moment... 

    I really hope you stay on this forum. I can relate to your feelings as I felt similarly when I first joint but please believe me that you are more than welcome here!! 

Children