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Autism Facebook groups - Parents v Adults

stranger

When I say "adults", I mean people on the spectrum.

I have just been kicked out of a Faceboook group which is mostly populated by parents of children on the spectrum. No PM explaining why and no warning.

It seems as though you can't ask questions without being accussed of having a go at someone / upsetting them. I was then told off for arguing. My crime? Explaining why sometimes, there are people on these groups who either don't have Autism or don't have children on the spectrum. That is not arguing.

I also found that I was largely ignored on this group and was more of a "what am I entitled to, now that my child has Autism?" group, rather than actually supporting people and giving advice. They started to approve posts and it seemed that parents could rant about whatever and post whatever they wanted. But I couldn't.

It seems there's a divide between parents whose children are on the spectrum and adults on the spectrum.

Anyone else noticed this?

Parents

  • Hi Stranger,

    I've not really experianced what unfortunatly had to go through but have had another user say things about me.

    I do understand your and other's fustrations with these forums and to NAS.

    I think because NAS was founded by parents like Lorna Wing (not saying this is incorrect or they haven't done a good job) that it does get us adults pushed away.

    Because I'm also a NAS Ambassador and fighting for adult services, Autism Act etc I kind of see things that NAS have been trying to do for adults like the recent campagin but I do TOTALLY agree that things do seem one-sided towards parents. This is defo needs to be ressolved.

     

    In the meantime, at least we have this place to meet like minded people.

     

    I also tend to agree a lot with IntenseWorld's views but wanted to know if it has been proven like in research etc that the autism not being diagnosed etc has in fact lead to the co-morbid mental health conditions. As I have them too, I do know we're more predisposed or whatever, but would like to see if there has been anything to look into this much further.

     

    Bytheway, I am also upset at NAS but I just feel at least we have something than absolutly nothing, even if that something is utterly rubbish at times.

Reply

  • Hi Stranger,

    I've not really experianced what unfortunatly had to go through but have had another user say things about me.

    I do understand your and other's fustrations with these forums and to NAS.

    I think because NAS was founded by parents like Lorna Wing (not saying this is incorrect or they haven't done a good job) that it does get us adults pushed away.

    Because I'm also a NAS Ambassador and fighting for adult services, Autism Act etc I kind of see things that NAS have been trying to do for adults like the recent campagin but I do TOTALLY agree that things do seem one-sided towards parents. This is defo needs to be ressolved.

     

    In the meantime, at least we have this place to meet like minded people.

     

    I also tend to agree a lot with IntenseWorld's views but wanted to know if it has been proven like in research etc that the autism not being diagnosed etc has in fact lead to the co-morbid mental health conditions. As I have them too, I do know we're more predisposed or whatever, but would like to see if there has been anything to look into this much further.

     

    Bytheway, I am also upset at NAS but I just feel at least we have something than absolutly nothing, even if that something is utterly rubbish at times.

Children
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