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Autism Facebook groups - Parents v Adults

stranger

When I say "adults", I mean people on the spectrum.

I have just been kicked out of a Faceboook group which is mostly populated by parents of children on the spectrum. No PM explaining why and no warning.

It seems as though you can't ask questions without being accussed of having a go at someone / upsetting them. I was then told off for arguing. My crime? Explaining why sometimes, there are people on these groups who either don't have Autism or don't have children on the spectrum. That is not arguing.

I also found that I was largely ignored on this group and was more of a "what am I entitled to, now that my child has Autism?" group, rather than actually supporting people and giving advice. They started to approve posts and it seemed that parents could rant about whatever and post whatever they wanted. But I couldn't.

It seems there's a divide between parents whose children are on the spectrum and adults on the spectrum.

Anyone else noticed this?

Parents

  • That is what annoys me in the autism community internet forums, it is like some middle class ladies tea and cake forum raising money for africa, without being actually in africa or knowing africa. Then the person in africa starts talking about africa, and everyone starts looking at the africian person with distaste.

    For me,, I thought(rigid expectations) I suppose, that I would be in centre circle within the autism community with other autistic peers, with the experts, parents and NT's on the perpherical giving us respect and not being the lead in the autistic world.

    D'oh, turned out the opposite,, so you feel more rejected, sidelined, mutated and confused.

    I am glad I can at least moan a bit on here and with some likeminded people who understand, but the reality it is not a real autistic forum, nor the facebook one that you found.

    I have found most autistic people to have a honesty and an intellect which is refreshing, most Nts can't take this, they experience directness as hostility and competition in lieu of objective solution thinking.

    I think a lot of there autistic forums, including the NAS forum is acting as an autistic support parent group forum not as an autistic persons forum, this clashes, there is no middle ground understanding, due to social experiences are different. Although Intense and some others can see bothsides of the coin.

    That begs the question is the NAS an autistic support parent group forum or an autistic persons forum. ?

    I see four camps of Autism understanding: ,  NT's ~ don't understand autism.. Nt's parents of autistic people ~ understand autism to a degree.. Autistic People ~ get it ! Autistic Parents ~ Really get it !

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  • That is what annoys me in the autism community internet forums, it is like some middle class ladies tea and cake forum raising money for africa, without being actually in africa or knowing africa. Then the person in africa starts talking about africa, and everyone starts looking at the africian person with distaste.

    For me,, I thought(rigid expectations) I suppose, that I would be in centre circle within the autism community with other autistic peers, with the experts, parents and NT's on the perpherical giving us respect and not being the lead in the autistic world.

    D'oh, turned out the opposite,, so you feel more rejected, sidelined, mutated and confused.

    I am glad I can at least moan a bit on here and with some likeminded people who understand, but the reality it is not a real autistic forum, nor the facebook one that you found.

    I have found most autistic people to have a honesty and an intellect which is refreshing, most Nts can't take this, they experience directness as hostility and competition in lieu of objective solution thinking.

    I think a lot of there autistic forums, including the NAS forum is acting as an autistic support parent group forum not as an autistic persons forum, this clashes, there is no middle ground understanding, due to social experiences are different. Although Intense and some others can see bothsides of the coin.

    That begs the question is the NAS an autistic support parent group forum or an autistic persons forum. ?

    I see four camps of Autism understanding: ,  NT's ~ don't understand autism.. Nt's parents of autistic people ~ understand autism to a degree.. Autistic People ~ get it ! Autistic Parents ~ Really get it !

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