Separating The Self

On a lot of posts on this forum we talk about autism, and us. We differentiate between those two things.

However, clearly, if we are autistic then we are also autism. So I feel as if we need to not refer to those two things separately?

It's extreme, but I sort of want to change my name to autism so people refer to me in one go.

So instead of:

'Oh so you are austistic?' ...'yes, my name is ________, and I am autistic'.

It would go:

'Oh hi there Autism' glad to see you.' 'Yes, hi there, nice to see you too. It's nice to be seen for who I am, and not a person WITH a condition you must accommodate'.

Parents
  • Autistic is an adjective (describing something) but autism is a noun (an actual thing.)  So saying "I am autism" is a bit like saying "I am glasses."  

    I am autistic.  I am queer.  I am British.  I am a parent.

    Language is weird.

  • Thats sort of my issue. Why should I have to tell people?

    I'd rather say, if a situation required it, to say ' yeah sorry, I struggle with load noises... Or... I have some sensory issues...or I just don't excel at making small talk'

    Overall I think I have an issue with the societal need to categorise people so readily. They call it autism, I call it normal

  • There are people who are not autistic who also have difficulties for example with loud noises. They might just say so, without explaining themselves. We should be able to state our preferences or needs etc as just that and it should be respected. 

    I think often as the wider world has fixed ideas about autism, I think sometimes the autistic community has fixed ideas about what neurotypical means. This is understandable as many autistic people have faced difficulties in life around others. 

    There needs to be more discourse between the two camps.

  • So when I say "I'm autistic" as if this explains everything, it actually explains nothing.

    That's probably why I get no reaction off the people I tell. Who I tell with a purpose because I think it's relevant to the situation at hand like at appointments and i now know what difficulties i have. I understand in my head how everything fits together and for some reason expect them to have some sort of idea of any of this. I think often people don't want to assume anything or/because it takes them by surprise.

  • I think, ironically, that I have a bit of a "theory of mind" gap when it comes to autism as well.  I have an idea of what autism means in my head after looking at all sorts of sources, and sometimes I forget that other people don't have the idea and meaning in their head.  So when I say "I'm autistic" as if this explains everything, it actually explains nothing.

    In the same way that we all have an idea of what the word "mother" means, but that idea and its associations have grown out of our own experience.

    It's like the Sally Ann test all over again.

  • I think there's an element of self understanding and confidence needed. That's what a diagnosis has given me but it's always work in practise.  Also being able to communicate one's needs sufficiently. Part of me does want to mention autism to others just to make people more aware of the diversity within it. 

Reply
  • I think there's an element of self understanding and confidence needed. That's what a diagnosis has given me but it's always work in practise.  Also being able to communicate one's needs sufficiently. Part of me does want to mention autism to others just to make people more aware of the diversity within it. 

Children
  • So when I say "I'm autistic" as if this explains everything, it actually explains nothing.

    That's probably why I get no reaction off the people I tell. Who I tell with a purpose because I think it's relevant to the situation at hand like at appointments and i now know what difficulties i have. I understand in my head how everything fits together and for some reason expect them to have some sort of idea of any of this. I think often people don't want to assume anything or/because it takes them by surprise.

  • I think, ironically, that I have a bit of a "theory of mind" gap when it comes to autism as well.  I have an idea of what autism means in my head after looking at all sorts of sources, and sometimes I forget that other people don't have the idea and meaning in their head.  So when I say "I'm autistic" as if this explains everything, it actually explains nothing.

    In the same way that we all have an idea of what the word "mother" means, but that idea and its associations have grown out of our own experience.

    It's like the Sally Ann test all over again.