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Hypermobility?

Jenny Butterfly

Hello All.  Just wondering whether there are any other families out there with hypermobility issues and, if so, how they work with these. 

Here we are keen on postural restoration techniques (see Neal Hallinen's Youtube videos if these might be of interest to you, although these aren't specifically geared towards autistic people), plus gentle yoga and polyphasic sleeping (since many of the issues seem to arise during sleep, when posture cannot be easily controlled and sleeping for longer might exacerbate things).

I'm also wondering whether ADHD drugs are helpful or not.  My impression is that, although they can definitely improve focus at the right level, this level might also stimulate the nervous system and make "nerve hypermobility" worse - i.e. the feeling of nerves being out of place and lots of "popping" going on, with quite a long recovery time needed.  Does anyone have any experience of this?  I'm not even sure whether "nerve hypermobility" is actually possible, although this is what it feels like. 

Any thoughts?

Parents

  • I'm really glad you raised this issue again.  It is a fascinating area for us lot.  The last time I did a "dive" on the subject, I saw a fair bit of research that indicated a common cause/source of autisitic hypermobility and the IBS that many autistics are also dogged with - it was something to do with connective tissue !?

    I'll hopefully find / resurrect my notes and post later.

    Personally, I can wiggle my ears - but that's about it !? lol

  • in reply to Deleted User

    Yes.  One of us seems to be affected by nerve/joint "popping" and hip problems that often become painful if sleeping for too long or in the wrong position.  Unfortunately, it's not something we even thought of earlier on in life (but then, let's face it, we didn't realise that we were autistic either).

    When I was in primary school, I remember being asked to demonstrate yoga poses for the class because, "Jenny can turn herself inside out".  But I'm now thinking that Jenny shouldn't have been turning herself inside out and that having done so quite regularly might cause me joint problems later in life.  I don't think I'm actually that flexible these days, although perhaps moreso than most, and my thumb joints will bend back at 90 degrees (again more than most but I can't bend my thumbs down to touch my inner forearms, which is a picture I see quite often when I search for info on hypermobility.  

    Any info would be very much appreciated

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  • in reply to Deleted User

    Yes.  One of us seems to be affected by nerve/joint "popping" and hip problems that often become painful if sleeping for too long or in the wrong position.  Unfortunately, it's not something we even thought of earlier on in life (but then, let's face it, we didn't realise that we were autistic either).

    When I was in primary school, I remember being asked to demonstrate yoga poses for the class because, "Jenny can turn herself inside out".  But I'm now thinking that Jenny shouldn't have been turning herself inside out and that having done so quite regularly might cause me joint problems later in life.  I don't think I'm actually that flexible these days, although perhaps moreso than most, and my thumb joints will bend back at 90 degrees (again more than most but I can't bend my thumbs down to touch my inner forearms, which is a picture I see quite often when I search for info on hypermobility.  

    Any info would be very much appreciated

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