Pre-diagnosis

Hello
I am in the pipeline for an autism diagnosis, however I am yet to hear a response from my local autism service (beyond the initial "here is a questionnaire for you to complete").
I completed the RAADS-R, as requested, and upon doing so, I discovered the scoring for said test - my results seemed rather high (I stopped counting at 130 or so).
In the meantime, I have reached out to a fellow autistic on twitter, who suggested their GP indicated it was fine to self-diagnose as autistic in the interim. My GP interaction comprised a 10-minute phone call, followed by a referral form. 
Recently, and after a lot of reflection, I "came out" at a work do (rather a lot of alcohol was consumed), and the responses were mixed: from the sympathetic "Do you want to come outside? It's a lot quieter... " (It was a very loud, unpalatable environment), to the inevitable "You ain't autistic!", and "Everyone is a little bit autistic!".
Later that evening, someone uttered the phrase "autistic {expletive}", but I cannot be certain of the context - not even sure it was directed toward me, other than I was the one who brought up the a-word at some point earlier in the evening.
I have an employee assistance service through work, but talking to someone - having to start from the beginning - is scaring me significantly, to the point of inaction.
I am married with a couple of teenage children, but things are significantly deteriorating at home. I was effectively told to cover up my anxiety attacks - it is upsetting the kids!
I am an intelligent, normally rational person, but I cannot convince my brain to seek help (beyond the initial GP referral). 
I feel like a fraud.
After a year in my job, I plucked up enough to talk to my boss. He was sympathetic, and they have volunteered to pay for a private diagnosis, but the feelings of fraudulence is overpowering, so I have not taken up their generous offer.
With Christmas looming, my anxiety levels have become less than tolerable.
I need help, but interaction scares me.
Parents
  • I've finally had my NHS diagnosis after more than two years on the waiting list.  I was literally throwing up with anxiety the week of the assessment, panicking about what would happen if they said I didn't have it.  Or if they said I did.  I was still questioning at this point whether I was making it up, in spite of scoring very highly on all the tests.

    I would take up the offer for private assessment if it's still available.  They wouldn't have offered if they didn't think it was worth investigating.  And your scores suggest that it is.

    I've found it's pretty much impossible to ask things like this in person or on the phone, but I can send an email.  Still stressful, but at least I can write my thoughts in my own time. 

    I understand how you feel, and I hope you find a way forward.

Reply
  • I've finally had my NHS diagnosis after more than two years on the waiting list.  I was literally throwing up with anxiety the week of the assessment, panicking about what would happen if they said I didn't have it.  Or if they said I did.  I was still questioning at this point whether I was making it up, in spite of scoring very highly on all the tests.

    I would take up the offer for private assessment if it's still available.  They wouldn't have offered if they didn't think it was worth investigating.  And your scores suggest that it is.

    I've found it's pretty much impossible to ask things like this in person or on the phone, but I can send an email.  Still stressful, but at least I can write my thoughts in my own time. 

    I understand how you feel, and I hope you find a way forward.

Children
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