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Level of autism

Ella_Roulette

Hi, 

I was diagnosed and told im level 1 Autistic. On the internet it says the mildest form of autism but I feel I struggle with all aspects in my life. I did try and explain although I seem quite at times it's because I shut down in myself when anxious like during my assessment. I'm worried if means I'm just mild and don't need as much help or understanding or I should keep masking because people think I'm weird. Has anyone else found this? 

Thank you. 

Parents

  • I got very hung up on my level one too when diagnosed in January. I got obsessed with the score even - how close was I to where 1 meets 2, or was it only a bit beyond the ‘on the spectrum’ bridge or what? The thing that helped me relax a bit about was hearing about spiky profiles. As it’s the changing environment that disables us, as well as other factors that give you your ‘spoons’ for the day, sometimes (maybe a day at home) we’ll feel less challenged or anxious and start to feel imposter syndrome. Then the next day, we are back to masking, dealing with sensory overload, being drained as we mask, etc. leaving no doubt at all. The struggle is real. And permanent. I got in touch with my assessor so me weeks after diagnosis wanting more of a precise fixed point placing on some sort of axis and they told me to stop looking it like that. I suppose in a way the fact that I did get so intensely fixated on wanting that specificity tells me a lot in itself! I’m sure you can empathise, and that tells you something too…

  • in reply to Shardovan

    Yes that sounds very much like me right now. I just can't get it out of my head and worried it means I won't get help. Thank you for explaining all of that. It's helpful to think of it that way and nice to know I'm not alone in fixating about it. Thank you, that's true! 

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