Level of autism

Hi, 

I was diagnosed and told im level 1 Autistic. On the internet it says the mildest form of autism but I feel I struggle with all aspects in my life. I did try and explain although I seem quite at times it's because I shut down in myself when anxious like during my assessment. I'm worried if means I'm just mild and don't need as much help or understanding or I should keep masking because people think I'm weird. Has anyone else found this? 

Thank you. 

Parents
  • My Son is six. He plays along side other children, doesn’t understand social rules and has difficulty with language. He is very likeable socially he just doesn’t always know what’s appropriate. He isn’t toilet trained needs help with self care and gets off balance. He struggles with change of routine and the unexpected. Sensory wise only noise bothers him, he is a little particular with food and clothes. He loves lights, especially fairy lights and has some imagination. He has a lot of the criteria but not to a severe level. More mild/moderate. He has not been given a level. We took him to a quiet grotto which he didn’t like as it was too calm for him, he most likely wanted trees with fairy lights. He saw Father Christmas in the Sensory room at his school and he liked it because of the sensory lights. 


  • I hope this is taken in the good spirit it is meant, but, aside from "he has not been given a level" I'm not sure what you are trying to add to this thread with that reply, it feels a bit non sequitur since you don't seem to be stating your opinion (all I'm seeing is a description of your son), and you don't seem to be asking for others opinions, or asking for advice/resource help either.
    If you would edit and/or add clarification that would be helpful.

Reply Children
  • If you read the rest of the comments in this thread, you will notice that many people here think that the idea of levels is not accurate or helpful.  Mostly levels are used by non-autistic people to describe how much of an inconvenience we are to them.  They claim to be based on a person's support needs, but as a lot of the challenges are not perceived by non-autistic people it misses the mark.

  • I was wondering if anyone could tell the level of ASD my Son has. I have realised that no one can tell me what level my of ASD my son has, except maybe the person who assessed and diagnosed him. I think because people on this forum can explain or at least try to explain, some things about my Son based on their own experiences., they will know everything including what level of ASD he has. Of course that’s very difficult to know.. Basically he has ASD he’s a child so has lots of growing and developing to do. He has some very good and positive days and some days that are more challenging for him.