Getting help within the NHS

Hi everyone,

I have been having trouble getting my prescriptions. None of my prescriptions are for my autism (unless you count the anti-depressants, being undiagnosed for so long did partially cause my depression.)

I get very stressed about getting my prescriptions, I am constantly worrying that I am going to run out, that I am not going to be able to get my prescription in time etc. A lot of this is due to being unable to order my prescriptions again too close to when I just got them and having previous experience with delays due to my GP, the pharmacy and due to medication shortages.

I understand why I can't order the same medication within a certain time frame, but this means that I get very stressed. I see I only have a couple weeks left (I get it a month at a time) and panic that it is going to take longer for me to get some more meaning that I will have some days without it.

The last time I had a medication review. I tried to talk to the doctor about this, and tried to explain that I was autistic and this is how I am feeling, and tried to ask for help. But was told that it was my fault and I needed to be more organised. This resulted in me being out of it for days after and having a panic attack and crying for a hour after. Also, this was all on the phone because at my last GP I attempted to ask for an in person appointment due to my autism and was told I could not and was hung up on. So, now I am too scared to try to get an in person appointment.

So, in conclusion that is why I hate the NHS and how they respond to autism.

PLEASE HELP!!

Parents
  • I'm a retired GP and autistic. It is a problem that most meds are only given as 4 weeks now. Your surgery may have an online ordering system, where you can see your medication dates ( when last given etc) and you can ask for your local chemist to order it for you, which they will do at a certain regular date, but anything can go wrong. It used too be easy to speak on the hone to sort things out, but not now

Reply
  • I'm a retired GP and autistic. It is a problem that most meds are only given as 4 weeks now. Your surgery may have an online ordering system, where you can see your medication dates ( when last given etc) and you can ask for your local chemist to order it for you, which they will do at a certain regular date, but anything can go wrong. It used too be easy to speak on the hone to sort things out, but not now

Children