PIP for high functioning autism’s

PIP like DLA  before it is less about disability and the help you need , and more about how well you put over your case for getting it or how well someone does for you.

I’m in two minds about this one - I’ve always lived by the truth and have been totally honest, never following the herd and I’ve always lost out, then I’ve seen other groups getting everything after faking it and pulling off all manner of scams - I’m beginning to wonder if we should start doing the same to get what we should be entitled to 

I found out on Friday that they are doing a paper based one without me asking anyway, so have requested the report and will just wait for it to come in the post

I was awarded the higher rate after reconsideration and on appeal I was awarded the mobility component. On renewal, where I had to apply all over again, my point score was significantly higher even though my difficulties were unchanged. I am not sure why, even the evidence given was the same

The process did cause me a lot of distress. It really helps to have support with the process, even from a loved one. My therapist helped me with the initial phone calls which they insisted on and I was just not able to manage.

Even if you work, you can qualify but you'd need to show why you can work or look after your children but not manage the other things well, as they seem to look for things they don't feel is consistent on your claim and make possibly frustrating assumptions based on that. Autism by nature can seem inconsistent to someone who isn't specifically trained to understand ASD.

I hope your phone assessment went well and I hope you feel able to fight for anything you may be entitled to.

Yeah I know what you mean. I was in a shared accommodation in a YMCA for a while and even the fact that other residents were several years younger than me; the compressed, hermit-mode anxiety was almost beyond my ability to cope.. almost.. evidently.. 
Nobody quite considers the impact of obnoxiousness against socially-sensitive, sensory-sensitive people; they don’t consider the strain on a person who internalises stress for fear of being a target and braces for the worst for their revision of traumas in the past. 

Congratulations on the new place! I do love my new place now, I think it was just stuff I didn't realise I needed (like having lived with my parents for- at the time 27+ years) I didn't realise that moving to a new place everything would smell different and therefore 'wrong' and I didn't know the way to make it smell the same as my parents house! (had to ask for all the same cleaning stuff etc in the end and after a few months Covid lockdowns hit so I wasn't able to continue visiting my parents house as often for their protection, so it made me a bit less homesick for their house and let me have more time to get used to the house).

If you are getting insurance for unemployment that will cover you a bit with your worry about your boss? Though not fun to have a boss like that

Maybe don't sleep with a knife I read that there is a high chance of that being used against you in a fight or something? Plus a bat or something longer could mean you could be further away from an intruder (not that I think an intruder situation would be likely, but if you would like to be prepared!)

im getting a new house myself too, a flat, just got mortgage approved. i think id be better off alone, although i think id be sleeping with a knife and constantly checking to see if anyones broke in lol although given its a small flat with less room to check and less ways in maybe id be more at ease. im already worried about possibilities of anything going wrong, as nothing ever fully goes right for me, theres always something to ruin it lol im guessing perhaps my supervisor at work will get me fired and cause me to lose everything, thats the big main worry on my head as my supervisor is a bit of a douchebag who purposely tries to harm people and takes pleasure in it.

I don't know much but we have been through the pip system as my son has asd he basically is housebound his anxiety pretty much crippling.However he can be left to fix himself a meal he can wash himself etc ..my point is what even is high functioning anyway its all labels and we are all individuals you can't put us into boxes. I say this because every single person's case is very different and I would take your focus of the terms ie "high functioning" and instead go through the form which I know is awfully.. but go through and answer each question as best you can and then get someone you know and trust who has known you a long time to go through each question and double check it as there maybe thing you don't realise that you do that you are not putting down. For example a lot of the questions if my son were to answer them without me assisting he would not have mentioned half the issues he has.

Also you can request a paper assessment, that website I mentioned has information on it all 

Yes they were fine, they said yes before I had even finished my sentence. 

Don’t give up on living in your house, any change is massively difficult, you need time to adjust. 
when I moved out of my parent house with a baby , it took me a year before I felt completely comfortable in my new home. 
My parents kept my room and some baby bits at there’s  so I could spend some nights with them and some nights at my home, over time I got use to my new home. Yes there were plenty of panic attacks and crying but 10 years on I still live in the same house with my daughter, and it’s home . 
take it slowly, be kind to yourself, 

Were they ok with doing that (like not difficult about it or anything?) I am not great on the phone either, but someone said sometimes they do home visits?

I did my assessment this morning over the phone. The appointment was arranged to be at a office but I rang and explained that due to my anxiety I wouldn’t be able to meet face to face . 

I used this website , which has helped me massively to fill in my form https://www.benefitsandwork.co.uk/. I had to pay a small amount to sign up for a year but was worth the money, 

I felt my assessment went well in the end, but now got to wait for 8 weeks to see how many points I get . And even thou I was nervous, doing it over the phone was far less stressful than face to face

tbh I might have to anyway, as I don't know where the assessment thing might be and so I don't know if I could get there without them taking me lol! plus I don't want to have to ask my partner to take time off his work to come with me (as he will already have to help with the form - I don't have it yet but I am stressed already thinking about it hahah!) My Dad only recently told me that when I got this house with my partner that they were prepared for me to have to move back with them?! (This was before the Autism diagnosis too lol, I had just moved into my new house, was having constant panic attacks for about 3 weeks, had to keep going back to stay with my parents, couldn't eat or sleep as everything felt wrong, yet my parents were like 'yeah we didn't know if you would manage it' -- could have told me before hand, I signed up for a mortgage already?!!)

bring your parents 100% .... make it look like your parents control every decision of your life and you are dependant on them still, that should get you some points as its generally the thing they looking for and the thing that shows you cannot really stand on your own feet lol

Thanks for this question and the replies, I too am stressing out about this, as just started the process, and though I probably have so much past proof of MH stuff etc I am not sure I have super recent stuff, but only as I cant be bothered talking to my doctor about things that are just 'life things' now (why would I tell my doctor I don't go out on my own, I am ok if my partner or parents are with me so what would they do about it, or if I can't really eat on my own or make decisions or forget to take meds, doctors have enough to deal with, this stuff sounds boring!)

it will be under hard scrutiny ..... if you display a functioning life they wont find reason to award you it, if you have friends, a relationship, a job, then they will likely say no.

I got Zero points at my first Interview, but received Standard-Rate Daily Living; after a mandatory reconsideration.

Last year, I had another interview; over the phone. I was cuter, and received the same offer; but until 2027.

Yes, fairly straightforward process if you have doctor evidence etc

Yes, me... BUT only after a request had been made for a mandatory reconsideration.