Partner looking for advice

Hi,

My husband has occasionally said that he thinks he is Autistic. It's not obvious that he is, but he does exhibit some unusual behaviours. Our relationship of 20 years has been difficult at times and I am still looking for answers as to why he behaves the way he does. He has also mentioned PTSD and depression but he has not ever been diagnosed because he does not like going to doctors anyway and avoids most contact with people. So I thought I'd list some of his behaviours to see what you think:

1) We met after talking online and on the phone - he was a very good communicator online. When we met I did notice some odd behaviours, as if he were a little uninhibited in public, but nothing extreme

2) He has extreme anxiety in work meetings which he said would trigger fight or flight response. I have never witnessed this, but he has recounted quite uninhibited behaviours

3) He used to go to a yearly conference and was required to wear a costume for one night - I remember that he would spend an inordinate amount of time making sure it was just perfect and complaining about the need to do this. He would also complain about having to be in the car with his colleagues to get to the conference

4) At work he had a managerial role and would sometimes have to remove himself from a situation with an unreasonable customer as he felt himself losing control 

5) He stopped working as dealing with the public was causing him too much stress. He has anxiety linked to interviews so maybe that is the reason why he has not found a job in 4 years, despite telling me that he has applied. He says that he has never found something suitable where they have called him for an interview. I don't mind this as I work long hours and he cooks and runs the house.

6) At home, he sleeps in his own bedroom and he keeps the door closed. He has made it clear that when he is in his room, I am not to knock or call him. I use WhatsApp if I need to communicate and her responds then.

7) He does not have any friends or social life. He has had friends in the past, but has not kept in touch. I have a couple of friends I see only occasionally and it has taken 20 years for him to feel comfortable around them. If I have new friends or family who come round, he stays in his room.

8) He has periods when he is extremely intolerant of myself and others. When that happens, I feel like I am walking on eggshells. He is verbally abusive and emotionally distant. He can retire to his room for a week at a time without talking to me at all. In the past it was longer than a week.

9) The arguments we have are about nothing. He will criticise me for the slightest thing: last weekend he criticised me for taking 10 seconds before I realised that 1 of 8 self-service cash till was free. When this kind of thing happens he is very harsh and will be verbally abusive.

10) He thinks women are the cause of most evil in the world. He has had many arguments with me when he said 'you lot' and a load of abuse. He chooses what we watch for entertainment because he is so triggered that it can ruin an evening if he sees something that he doesn't like. It happens when he chooses the programme, so I daren't suggest something myself just in case.

11) He struggles in enclosed spaces like restaurants or similar. He always has to sit on the outer edge so he can have a quick escape route.

12) I once booked a surprise weekend away in Amsterdam for New Year's Eve, flight and hotel, for one night, having first checked with him that it was ok. The night before, he told me he wasn't coming. I went on my own. We bought a new car. The night before, he told me that he didn't think I could drive it (he doesn't drive), so I had to go on my own to buy it. A year later, I booked it again and he came with me and all was fine - although he did try to cancel that the night before too, but I woke him up in the morning and he came with me.

Parents
  • Hi, from what you have written, I can see a lot of autistic traits in him. I’m an older male and autism only came onto my radar a year ago. To be honest, some of his behaviour towards you isn’t acceptable. If he is mainly at home now, what is triggering him in  isolating himself? I’m not an expert but I assume a woman has damaged him in the past which isn’t your fault. Without him seeking help, your options are quite limited. He seems to be in a gradual downward spiral. PTSD does look to be present, a lot of his anger is frustration, he directs it at you as there is only you.  He doesn’t have to formally seek a diagnosis, many here choose to self diagnose, there are loads of good books and YouTube videos on autism awareness. I fully understand the social problems he has, I would shutdown and stop talking for up to a week if a social occasion was nearing. The arguments sometimes were quite bad, I would instigate an argument and then go into what my wife called ‘radio silence’, now we both know what’s happening, things are a lot better. We now go to the village pub at weekends,  as I’ve got used to the surroundings and know all the staff now.

    Restutants are really scary to many autistic people, everyone is given a menu and makes ordering look easy, to the autistic person, this menu is about 3ft square and has hundreds of items to choose from. We are then expected to make a decision instantly, the 10 minutes from getting the menu to ordering seems like 10 seconds so then the anxiety starts to build. I now look at the menu on the internet and workout not just what I want but also what I can tolerate, food texture is important, the wrong food will cause me to gag.  Just looking the menu up now makes a night tolerable, also going when it’s quieter is better.
    Going to a hotel is stressful but I look at them on the internet now so I know what they look like.
    A change of surroundings can be very stressful for autistic people. Your husband is starting to recognise his autistic life. There is a Chanel 4 program called, Are you autistic?,  it’s on catch-up. Perhaps start the conversation with watching that and then seeing if he wants to research I little further. To be honest, finding out that I’m autistic has been life changing.  I spent so much of my time loathing myself and everyone around me because I felt trapped in this strange world that wasn’t mine if that makes sense. Your husband really needs to embrace his autism, it’s not his enemy, with  understanding life can be quite good.

    Sorry for the manuscript, some of the things I have mentioned are what affect me, all autistic people are different.

  • Thank you for your insight and for sharing your experience. After mentioning it, we haven't really talked about it, so it's hard for me to understand what is going on. I am not sure if he has researched anything and what he has found because we have not discussed it. I'll look up that Channel 4 programme and see if I can re-open the conversation.

Reply
  • Thank you for your insight and for sharing your experience. After mentioning it, we haven't really talked about it, so it's hard for me to understand what is going on. I am not sure if he has researched anything and what he has found because we have not discussed it. I'll look up that Channel 4 programme and see if I can re-open the conversation.

Children
  • He does have social filters to an extent, in public, but with me in private, it's different. Sometimes even in public, the filters have been dropped.

    I think he fixates on certain topics, so the woman thing is part of that. He has spent years researching the topic - his mum was a young hippy single feminist and he had no male role model around; they had a difficult relationship growing up, but it's reasonable now - I can agree with many of his ideas on women and men, but I have never accepted his blanket statements about women and many of our arguments have stemmed from that - I feel personally attacked when he says 'you lot this' and 'you lot that'. He is normally very rational, but I find him verging on the irrational on this one, although he is very perceptive on some of the details.

    He tries not to use the phone and hates video calls, but I will try to see what I can suggest. THanks.

  • I’ve just read one of your other replies. Autistic people often get told that they don’t have any social fillers, we tend to say it as it is. Interesting that his son is autistic, autism  it has been proven to be hereditary. His anger at women, is it possible that his mother was autistic and there was a miscommunication between them. It is really hard for undiagnosed children to often never feel a bond. The waiting list for an NHS assessment is over 2 years, it gives time to process all that has happened. I preferred seeing to doctor in person. Could he do video call or phone?