ESA and possibly ADD

I'm sure this subject has been discussed to death, for that I can only apologise. For a couple of years now, doing a little research on my own, I think that I may have what a Work Psychologist I saw 01/2012 called a neuro diverse condition. I thought it might be Aspergers, it might be ADD possibly Dyspraxia. I'm by no means an expert nor a diagonistician. I could be completely wrong and, as i suspect my GP thinks (but doesn't say), lazy! When I first saw the Work Psychologist (a dwp person, i don't know much about the specific role as I'd never heard of them before) I was on JSA. Since then I started on the Work Programme which I am still on. She claimed she could test for Aspergers but relented to saying she could do some kind of test to see if I might have ADD. I realise that makes no sense, but it involved answering a load of puzzles like remembering number sequences backwards and spotting patterns and stuff. From what I could understand she said it was highly likely. I have yet to get an official diagnosis as such facilities are not local to me and I find travelling around cities rather scary. There is now a chance the local CMHT might do one. However the Work Programme treated me badly. They ignored the information regarding my mental health (even though no formal diagnosis) and refused to accept even the possibility of such problems - of any kind. I was told that without a support worker present they wouldn't countenance any such possibility. I made a complaint and have since changed advisers. Though the replacement is better they still admit they can't do anything. Basically the WP is rubbish. I was told that the main problem was because I was on JSA and that I should claim ESA. To cut a long and predictable story short that's what I did, six months later I have, unsurprisingly, failed the WCA. I've sent the GL24 form back to lodge an appeal. I'm not sure how that will work but I'm told that doing so reinstates my benefit until such time as they decide whether to change their mind (I doubt it, let's be honest). In the meantime I have to persuade my GP I need help. I suppose my point in posting is just to hear what other people think. I haven't found my GP to be terribly helpful or sympathetic and the system certainly isn't. ESA should be employment support, but it seems to work on the basis that, in order to get into the WRAG (my stated goal, i don't claim to be deserving of the support group) you need to also qualify for the support group. This doesn't make much sense to me. As a result I feel guilty as if I'm swinging the lead. But on the other hand, I just can't cope with the DWP. I find life difficult and I find dealing with society at times very hard. All the stuff you've heard before no doubt. I can't say for certain I'm an aspie/add/whatever, so I could be wrong. But just trying to get support and be taken seriously is horrendous. It's enough to make you ill even if you aren't. If anyone has any advice I'd be grateful, thanks.
Parents
  • Don't pin all your hopes on the CAB though, you might be lucky, but I had a MIND advocate liaising with my surgery regarding reasonable adjustments and the surgery still refused.  I even involved Healthwatch and they are still not budging.

    PALS frankly are useless.  I have heard of one person who got their complaint upheld and compensation for expenses they incurred due to a crap CAMHS system failing to diagnose their child, but my experience with PALS was awful.

    Prepare for your assessment as much as you can, if you can get parental input ensure you have it.  If there is no access to parents for whatever reason, try to find someone who knew you as a child who can remember your behaviours.  Otherwise, you will have to go on what you remember.  It's not impossible to get a diagnosis without childhood history but some clinicians are reluctant.  Look at the triad of impairments and make notes of how you believe you fit them.  If you have any mental health reports which mention obsessive behaviours, OCD, difficulties in communication or anything relevant they will help.  If you come into enough money to get a private assessment you could go for one of those and have the results in time for your tribunal.  They cost upwards of £600 though.

Reply
  • Don't pin all your hopes on the CAB though, you might be lucky, but I had a MIND advocate liaising with my surgery regarding reasonable adjustments and the surgery still refused.  I even involved Healthwatch and they are still not budging.

    PALS frankly are useless.  I have heard of one person who got their complaint upheld and compensation for expenses they incurred due to a crap CAMHS system failing to diagnose their child, but my experience with PALS was awful.

    Prepare for your assessment as much as you can, if you can get parental input ensure you have it.  If there is no access to parents for whatever reason, try to find someone who knew you as a child who can remember your behaviours.  Otherwise, you will have to go on what you remember.  It's not impossible to get a diagnosis without childhood history but some clinicians are reluctant.  Look at the triad of impairments and make notes of how you believe you fit them.  If you have any mental health reports which mention obsessive behaviours, OCD, difficulties in communication or anything relevant they will help.  If you come into enough money to get a private assessment you could go for one of those and have the results in time for your tribunal.  They cost upwards of £600 though.

Children
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