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Advice what to do?

NAS82968

Hi, this is my first post! I’m not sure what to do and need some direction. I asked for an NHS referral for my child at the time to be assessed for autism. Basically, got the referral but did the testing on FaceTime due to lockdown. They told me she isn’t autistic as she’s able to engage in conversation and has eye contact ( even though she has vi). At the time I did say I disagree with there decision but felt helpless and didn’t know what to do. Obviously, time has gone on and my child that’s now an adult functioning has not improving. What are my next steps? It’s not about funding in education anymore, it’s about helping my daughter to be able to function. She can’t cope with changes, new environments, highly anxious, suffers from depression and so the list goes on. If anyone can advise me it would be very much appreciated. Thank you. 

Parents

  • You can ask for a second opinion, or look at getting assessed privately. If this is your choice, then let the new assessor have her report, and ensure that you correct and add into to it to show why you don’t agree and what issue remain.

    Failing that, you could try and source some help for her, perhaps with the autisticandadhd.org team or similar. Or she could try intensive CBT to help with her anxiety and how to manage it, and to start to motivate herself to improve the symptoms of depression. It’s hard, because she needs to be ready to make these changes, and really want it. Otherwise, results will be fruitless.

Reply

  • You can ask for a second opinion, or look at getting assessed privately. If this is your choice, then let the new assessor have her report, and ensure that you correct and add into to it to show why you don’t agree and what issue remain.

    Failing that, you could try and source some help for her, perhaps with the autisticandadhd.org team or similar. Or she could try intensive CBT to help with her anxiety and how to manage it, and to start to motivate herself to improve the symptoms of depression. It’s hard, because she needs to be ready to make these changes, and really want it. Otherwise, results will be fruitless.

Children
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