Some questions regarding to autism assessment

Dear all,

first of all, thank to everyone who replies to this forum. I have some questions I want to ask before my autism assessment.

1) I’m being referred to psychiatry through NHS, today I received a call from them telling me to set up an account with them. After that I asked when will my assessment be and the person who answered the call said he also doesn’t know, and he said he would get back to me on that but nothing has happened since. So I was wondering if anyone who has also been referred to psychiatry in the past and has had their assessment could let me know what usually happens after setting up your account and how long you are normally expected to wait for?

2) My family aren’t close to me (I started boarding since I was 5 years old), and my mum might even be considered a bit abusive (when I was doing researches online a lot of things she did to me in the past are listed as abusive behaviour, which including but not limited to hitting me, insulting me, controlling my finance, won’t allow me to eat as a punishment, hitting me while I’m trying to eat so I would cry and chock myself etc.). The reason I’m mentioning this is because I’ve heard during a lot of autism assessment people are being asked to bring their parents or ask their parents to fill out questionnaires about their childhood. My mum even insulted an autistic child in the past(not in front of him, she was acting super supportive when we were visiting the child’s family, and immediately made fun of him after we got on the car after the visit). Because of her behaviours I’m super nervous about letting her know I’m even considering of getting myself assessed. I am already assessed with dyslexia which she doesn’t know about, and she often makes fun of my speech because sometimes I can’t speak properly or say what I’m thinking. She also finds the fact I only started speak when I was 3 very funny and often used it as an insult to shame me during conversation.(she thinks my delay in speech proves how stupid I am therefore it’s a great tool to insult me even I’m already an adult)

3) I am currently seeking for assessment because of two main reasons, one being that my university told me I could receive support from them if I’m autistic, two being that I don’t have any friends or family members that supports me so I want to know if it just me being a horrible person so people don’t like me or there’s actually something wrong with me.(I only started to look into autism after everyone I spoke to in university, this is the first time I actually speak to people, have told me that they think I might be benefited from getting an assessment), but I’m unsure if there’s actual benefits of having the assessment and kinda want to back off, especially after having to constantly worrying about 2). The only benefit I have found out is PIP, which according to many stories online it’s barely possible to get anyway. So I want to ask what’s the actual benefits of getting diagnosed? 

Again, thank everyone who answers my questions, I know I’ve said a lot and I am sorry. Also sorry for my grammar and spelling.

Parents
  • You don't have to have a family member complete an interview of questionnaire, I was assessed without. I would just tell them you don't have anyone that can do it. 

    If you are wanting the assessment to get DSA support, give the assessor examples of struggling in education specifically so that gets mentioned in the report, (especially if you are from Wales as the wording for DSA evidence for autism from Student Finance Wales specifically mentions that you need to evidence difficulties in education). Are you already getting DSA for dyslexia? DSA usually funds a mentor and assistive tech for autism but presumably you already have the assistive tech and study skills already so it would just gain you mentor support if you wanted it. 

    Also if you are ready to talk about the history with your Mum, you will probably find your university offers a much better counselling service than anything you could access on the NHS. 

    For me, there aren't many benefits personally to being diagnosed, but lots of other people say they feel relieved, or they have more understanding now, or they can access support they couldn't before. If you are working your employer is required to make reasonable adjustments if you have a disability - this could be helpful to you in future. 

Reply
  • You don't have to have a family member complete an interview of questionnaire, I was assessed without. I would just tell them you don't have anyone that can do it. 

    If you are wanting the assessment to get DSA support, give the assessor examples of struggling in education specifically so that gets mentioned in the report, (especially if you are from Wales as the wording for DSA evidence for autism from Student Finance Wales specifically mentions that you need to evidence difficulties in education). Are you already getting DSA for dyslexia? DSA usually funds a mentor and assistive tech for autism but presumably you already have the assistive tech and study skills already so it would just gain you mentor support if you wanted it. 

    Also if you are ready to talk about the history with your Mum, you will probably find your university offers a much better counselling service than anything you could access on the NHS. 

    For me, there aren't many benefits personally to being diagnosed, but lots of other people say they feel relieved, or they have more understanding now, or they can access support they couldn't before. If you are working your employer is required to make reasonable adjustments if you have a disability - this could be helpful to you in future. 

Children
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