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Diagnosis - help

Pennie_Jane

I'm really struggling with not having a diagnosis.  I was assessed in 2016 but they said it would be unsafe to give me a diagnosis but that I seem to have 'traits'.  I was advised to contact the Autistic Society for support and read books on Women with Autistic Spectrum Disorder as I may resonate with a lot of what is written.

How am I meant to deal with life having 'traits' but not diagnosis?  I struggle in all aspects of life: I have NO friends, no one to talk to and have regular meltdowns.  I'm now off work due to mental health and physical ailments and feel like I am let down massively - possible fibromyalgia, known to be related to stress and I had an abuse upbringing by a mother who didn't want me and resented me.

What I really want is to be signed off from work to allow me time to recoup my life, get a little dog, go for walks and attend classes while completing my degree.  I can't work and study given how I am physically, and I need quiet and space to study due to ADHD and dyslexia.

Why don't I have the help I need?  I'm struggling. It's not nice being side-lined all the time and being called a 'weirdo'.

Parents

  • Thank you all for your kind support.  I have had a chat with my psych today and he has agreed to speak with the ASC assessing dept to see if there is any chance of reassessing me due to lack of honest input from my parents.  

    He is sending me to be assessed for the ADHD but has agreed that I may have a mix of ADHD, ASC and C-PTSD, which is why I find life hard to deal with.  So, I guess it's in his hands now to see what the ASC dept. say.  And then a 2-3 year wait for the ADHD.

    He has suggested that I speak with the Mind centre near me in regard to making friends in the meantime.

    Gosh, why does this have to be so hard?

  • in reply to Pennie_Jane

    Hi Penny Jane,I am glad that you have spoken to someone who can try and get the ball roilling for you.An ADHD assesment is surely a good start,and would afford you legal protection at least.Try to be patient regarding assesments,I am sure you will receive a favourable response from your ASC assessing department in time too.Good luck in all you do. 

  • in reply to NAS67695

    Thank you so much.  It's so hard self-advocating and being able to recognise things that I do.  I've been told that I might be dissociating and may have done that all my life as a means of survival...  So, we shall see.  I just keep telling him I need help.  I am showing him that I am trying to push forward and am a very self-driven person but social and employment is where I struggle the most and often find I have no one in my life, other than those who wish to exploit me.

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  • in reply to NAS67695

    Thank you so much.  It's so hard self-advocating and being able to recognise things that I do.  I've been told that I might be dissociating and may have done that all my life as a means of survival...  So, we shall see.  I just keep telling him I need help.  I am showing him that I am trying to push forward and am a very self-driven person but social and employment is where I struggle the most and often find I have no one in my life, other than those who wish to exploit me.

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