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Diagnosis - help

Pennie_Jane

I'm really struggling with not having a diagnosis.  I was assessed in 2016 but they said it would be unsafe to give me a diagnosis but that I seem to have 'traits'.  I was advised to contact the Autistic Society for support and read books on Women with Autistic Spectrum Disorder as I may resonate with a lot of what is written.

How am I meant to deal with life having 'traits' but not diagnosis?  I struggle in all aspects of life: I have NO friends, no one to talk to and have regular meltdowns.  I'm now off work due to mental health and physical ailments and feel like I am let down massively - possible fibromyalgia, known to be related to stress and I had an abuse upbringing by a mother who didn't want me and resented me.

What I really want is to be signed off from work to allow me time to recoup my life, get a little dog, go for walks and attend classes while completing my degree.  I can't work and study given how I am physically, and I need quiet and space to study due to ADHD and dyslexia.

Why don't I have the help I need?  I'm struggling. It's not nice being side-lined all the time and being called a 'weirdo'.

Parents

  • Hi,

    I was diagnosed ADHD aged 58 last year. I was also diagnosed ASD this week and I went through the NHS 'Right to Choose' referral scheme using Psychiatry UK - they have a hugely informative website which includes template letter for GP referral. As far as I know there are only a couple of UK areas who won't use this 'shared care' scheme, I believe this is listed on the P-UK site.

    As far as school reports go, I was lucky that I had some old primary school ones of my own, as both parents are long dead and my brother wouldn't have a clue where to start speaking about how I was growing up as he had his own issues at the time.

    So my daughter - aged 27 filled in the 'informant report' section which they said at the time of my assessment was probably much better information than, say, ageing parents who might dispute the whole neurodiverse thing out of hand.

    I hope that helps. The waiting times at P-UK are also very much shorter than waiting times with the NHS.

    Debs

Reply

  • Hi,

    I was diagnosed ADHD aged 58 last year. I was also diagnosed ASD this week and I went through the NHS 'Right to Choose' referral scheme using Psychiatry UK - they have a hugely informative website which includes template letter for GP referral. As far as I know there are only a couple of UK areas who won't use this 'shared care' scheme, I believe this is listed on the P-UK site.

    As far as school reports go, I was lucky that I had some old primary school ones of my own, as both parents are long dead and my brother wouldn't have a clue where to start speaking about how I was growing up as he had his own issues at the time.

    So my daughter - aged 27 filled in the 'informant report' section which they said at the time of my assessment was probably much better information than, say, ageing parents who might dispute the whole neurodiverse thing out of hand.

    I hope that helps. The waiting times at P-UK are also very much shorter than waiting times with the NHS.

    Debs

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