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Diagnosis - help

Pennie_Jane

I'm really struggling with not having a diagnosis.  I was assessed in 2016 but they said it would be unsafe to give me a diagnosis but that I seem to have 'traits'.  I was advised to contact the Autistic Society for support and read books on Women with Autistic Spectrum Disorder as I may resonate with a lot of what is written.

How am I meant to deal with life having 'traits' but not diagnosis?  I struggle in all aspects of life: I have NO friends, no one to talk to and have regular meltdowns.  I'm now off work due to mental health and physical ailments and feel like I am let down massively - possible fibromyalgia, known to be related to stress and I had an abuse upbringing by a mother who didn't want me and resented me.

What I really want is to be signed off from work to allow me time to recoup my life, get a little dog, go for walks and attend classes while completing my degree.  I can't work and study given how I am physically, and I need quiet and space to study due to ADHD and dyslexia.

Why don't I have the help I need?  I'm struggling. It's not nice being side-lined all the time and being called a 'weirdo'.

Parents

  • Sorry to hear that you are struggling to find an official diagnosis.

    I don't have one as yet, either. I'm going to have a 3 year wait for my assessment, as I'm on the waiting list, I'm OK with this, as I've not had an official diagnosis for 54 years, so a few more years won't harm. I'm still the same person with or without a diagnosis. 

    Just because you may feel that you are different, you are not a weirdo. I've struggled to socialise or work with most people all of my life & also dislike working within close groups of people, too. 

    If it's really important for you to have the diagnosis then I'd advise you to go private for one, if you could. 

  • in reply to Phoenixboy

    Speaking to someone who understands is soothing to me, thank you.  If only more people like you could come to the fore, I might not need to get pursue a diagnosis.  Thank you for replying - you have helped.

Reply Children
  • in reply to Pennie_Jane

    No trouble at all, it's all new to me, too. Well looking for an diagnosis that is. I just speak as I see. 

    I'm not sure how I'd feel if I didn't receive the diagnosis, really. It won't change whom I am. It's only the last few years that I've really give it any consideration to be honest, because this is my normal, my normal wouldn't be someone else's, at least I don't think so, anyway. 

    I'm very lucky & have a very supportive family. This has helped me through, I also have other chronic health conditions (auto immune disorder), too. So this for me is only part of whom I am & what I have to deal with on a daily, hourly basis. 

    Having a diagnosis may help me understand more about my past, growing up, dealing with things, this I'd assume may also be the case for you. 

    I've only made a few posts on here, so far, but I feel as though I've come to the right place.

    I hop you find some happiness moving forward.