Meeting with University Disability Team

More specifically I have a meeting with the autism specialist on the disability team. I am not diagnosed yet, I have had a triage appointment but since then they have just postponed and postponed my final assessment and it's now probable it won't happen pre 2022. In the meantime I was referred to nearly every NHS and charity based mental health organisation but all but one rejected the referral because my issues are 'too acute' and they 'don't manage that level of risk' and the one that didn't rejected it because they felt that my issues matched my "possible autism spectrum condition" and therefore it wasn't in their remit to deal with. So on that front I am in complete limbo at the moment and have been discharged back to my GP who has said she doesn't have anyone left to send me to and to come back if it gets significantly worse.

Throughout this I have endeavoured to stay in contact with my future universities disability team and keep them up to date, I will be leaving for the Uni on the 27th of September and the university have booked a meeting (online) for Wednesday. I'm very unsure of what to ask for or talk about in terms of possible accommodations. The uni has been very reluctant to give any suggestions or limitations or fundamentally any information or commitment at all via email, which while I understand is extremely frustrating.

Does anyone have experience dealing with university disability teams and autism? What type of things are reasonable to ask for? Anything you or someone you know found particularly helpful? Any suggestions or help would be gratefully appreciated.

Parents
  • I haven't dealt with a university disability team as a student but I work in a university and have engaged with them on a professional level.

    What I would say is, there is every chance you will be dealing with a very well intentioned person who is not autistic. This means that they may not fully understand your needs or think they do but don't.

    What I would advise is think about your sensory needs:

    • Would you be comfortable sitting in a lecture room/tutorial room/exam hall in close proximity with a lot of people? If not, you can possibly be assigned an individual room for exams
    • How do you do with bright lights? Would you be able to sit under them for several hours a day?
    • Can you take notes based on what someone is saying? They may be able to assign a notetaker for you
    • Is there a quiet place on campus you could use when you need it?
    • Are there assistive technologies such as text to voice readers you could avail of?
    • Do you think you may need longer to complete assignments?

    Dublin City University is the first Autism Friendly University in the world. It may be worth looking at what they do as an indication of best practice. https://www.dcu.ie/students/autism-friendly-0

Reply
  • I haven't dealt with a university disability team as a student but I work in a university and have engaged with them on a professional level.

    What I would say is, there is every chance you will be dealing with a very well intentioned person who is not autistic. This means that they may not fully understand your needs or think they do but don't.

    What I would advise is think about your sensory needs:

    • Would you be comfortable sitting in a lecture room/tutorial room/exam hall in close proximity with a lot of people? If not, you can possibly be assigned an individual room for exams
    • How do you do with bright lights? Would you be able to sit under them for several hours a day?
    • Can you take notes based on what someone is saying? They may be able to assign a notetaker for you
    • Is there a quiet place on campus you could use when you need it?
    • Are there assistive technologies such as text to voice readers you could avail of?
    • Do you think you may need longer to complete assignments?

    Dublin City University is the first Autism Friendly University in the world. It may be worth looking at what they do as an indication of best practice. https://www.dcu.ie/students/autism-friendly-0

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