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Online Post-diagnostic Support, discussion groups?

thargy

Hi,

I am 46 years old and was diagnosed as autistic less than a month ago. I am a mixture of incredibly happy at finally finding an 'explanation' for things that made no sense to me for my entire life but also full of questions.

I was a successful, award-winning CEO for 15 years, but I 'retired' 2 years ago. I know it was autism burnout now. I now volunteer as a NED for several charities whilst my wife works to keep us afloat. I'm not sure I could ever go back into the business world.

Anyway, I've been desperately looking for post-diagnostic support, but, as I'm sure you're all aware, everywhere is swamped with massive waiting lists.

I was wondering, are there any Zoom/online events that people attend or general autism catchups anyone can recommend? It strikes me that with the 'professional' community so over-stretched, such 'autism discussion groups' could be really helpful and easy enough to put together. I know there are many autistic people in digital (like me), so surely there's a Discord or Slack group out there?

Anyway, I would really appreciate some pointers as I'm currently going through this alone and I really would like to find people to talk to.

Parents

  • Hi, I have found this difficult in terms of groups etc as there aren't really any near me or that are appropriate. Most seem to be for childen/parents or people with high support needs. I do find watching youtube such as Yo Samdy Sam or Aspergers from the Inside helpful as I can quite relate to them.  Also maybe see if there are any community groups in your area.  Not specifically for autism but if there's any sort of well being stuff or, for example art therapy, mindfulness etc you might meet other autistic people there too.

  • in reply to Deleted User

    I’ve been watching a lot of TikTokers that have been really helpful, but I’lll definitely try these YTubers, thank you.

    The groups thing is exactly what I’m finding too. Being from the dev community, I’m really surprised there isn’t a popular discord out there, maybe we should make one?

  • in reply to thargy

    Many autistic are non-speakers, so it's prevailing tendency to communicate in writing I think.

    I struggle myself to have conversation with more than 2 people using speech. 

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