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Waiting for formal diagnosis

NAS80940

Hi.  I've recently had a mental health assessment and scored high on the autism test.  I've been referred to the local autism team and am waiting for an appointment for a formal diagnosis - aware this could be a long time off.  I have been searching online for advice about what to do pending the assesssment and there doesn't seem to be much advice.

I've done a bit of readingas I didn't know much about autism and late diagnosis- from what I have read, I tick a lot of 'boxes' and it would explain a lot about my life. Feel like I'm in limbo and not sure what to do pending the appointment.  Anyonehave any advice?

Thanks

Sam

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  • in reply to Dawn

    Really? Wow. This is interesting. I'm googling that app now. Was that an oversight when the system was designed. Often MH services are quite cagey about giving you information.

    I did a SARS release to get my note and I'm not sure they disclosed everything.

    But yes, I agree suddenly seeing what they thought all along gave me a lot of insight in to what went so horribly wrong with them. The hallmarks of my autism were all over my interactions with them and in the experience I was describing to them. And yet not only did they not recognise my autism, but never believed a word I said to them and dangerously misdiagnosis me without ever telling me what that diagnosis was. I will never trust them again.

    That said, I am however delighted that some of you are having more positive experience, with more MH professionals picking up on the autism.