After I was referred for an ADOS I received no correspondence at all. After 2 months I emailed them to ask what was happening, and they said I was on a waiting list and should have received a letter. They said the waiting list was about 9 months and that they would re-send the letter.
That was over a year ago and I have heard nothing since then. And I still didn't receive the letter that they said they have sent twice.
Obviously there are high waiting times on the NHS in general, and mental health is worst of all. But for me I really hate uncertainty. I don't mind waiting, but I need to know what is happening. I hate not knowing, and I hate fearing like I'm suddenly going to have to go somewhere at short notice.
Shouldn't companies that diagnose and treat autistic people have better awareness and provide clearer unambiguous communication?
